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In Memory of George F. Sidoris: A Siblings’ Labor of Love
More than 20 years ago, siblings Christine and George J. Sidoris first noticed troubling changes in their father’s behavior during a family gathering. “Normally, when my brother and his family…
Advancing Hope: AFTD Attends AAIC 2024.
Debra Niehoff, Kim Jenny, and Shana Dodge from AFTD and Sweatha Reddy from the FTD Disorders Registry attended the Alzheimer’s Association International Conference (AAIC), which took place in Philadelphia starting…
The Lived Experience of FTD: Getting to Know the Persons with FTD Advisory Council: Deb Jobe
Formally chartered in 2020, the Persons with FTD Advisory Council works to ensure that the insights and perspectives of people living with FTD are included in the development of AFTD’s…
Aviado Bio CMO Discusses ASPIRE-FTD Clinical Trial with Neurology Live
In a recent interview with Neurology Live, Aviado Bio chief medical officer David Cooper, MD, discussed the company’s Phase 1/2 ASPIRE-FTD trial. Dr. Cooper shared how the company’s AVB-101 gene…
Advocacy Update: FTD Awareness Week
With FTD Awareness Week quickly approaching, we asked AFTD advocates to help us obtain a resolution or proclamation in every state, and the community has definitely risen to the occasion.…
AFTD Brand Influencer Discusses Commitment to Caring
AFTD Brand Influencer Nicole Petrie shared her family’s FTD journey with host Lisa Opie on the podcast Miss Represented earlier this year. Petrie is a model, activist, and entrepreneur, and…
Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy
A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset dementias (YODs) like FTD in the Brescia province of Italy. As highlighted by…
AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast
AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the podcast All Home Care Matters in July to discuss the changed nature of…
Interactive Map Simplifies Search for Help on New AFTD “Find Support” Page
AFTD has just launched a new page designed to simplify your search for answers. We added an FTD Support Group and Diagnostic Center Locator, which includes a map that allows…
AFTD Grant Recipient Discusses Gene Therapy for FTD-GRN on Canadian TV
In an interview with the Canadian Broadcasting Corporation, Dr. Simon Ducharme of McGill University in Montreal discussed his recent administration of an experimental gene therapy to mitigate the progression of…
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