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Advocacy Update: AFTD Ambassador Corey Esannason Meets with Staff from State Senator Andrea Stewart-Cousins’ Office

On March 3 AFTD Ambassador Corey Esannason met with staff from New York State Senator Andrea Stewart-Cousins’ office. Corey was inspired to arrange the visit after attending the New York Alzheimer’s…

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Advocates Raise $1.8 Million+ in Fight Against Young-Onset Dementia at AFTD’s Hope Rising Benefit

More than 400 supporters joined together at AFTD’s seventh annual Hope Rising Benefit in New York City on Tuesday. This year’s charity gala – chaired by Donald Newhouse and co-chaired…

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Annual AFTD Hope Rising Benefit Raises Crucial Funds for Fight Against FTD

(L-R: Hope Rising Benefit Co-Chair David Zaslav, AFTD CEO Susan L-J Dickinson, AFTD Board member Kristin Holloway, Emma Heming Willis, AFTD Board members Donald E. Newhouse and Rita B. Choula,…

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Study Highlights Importance in Differentiating Varying Types of Disinhibition in bvFTD

A study published in the medical journal Cortex highlights the importance of differentiating between the various types of disinhibition in bvFTD. The study was conducted by Lara Migliaccio and Bénédicte…

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AFTD Staff and Volunteers Featured in Domestic and International News Stories

Members of AFTD’s staff, Board, and Medical Advisory Council (MAC), as well as AFTD volunteers, were featured in stories published by domestic and international news outlets following the announcement of…

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New Book on Atypical Dementias Explains FTD with Case Studies and Lived Experiences

A recently published book, Atypical Dementias: Understanding Midlife Language, Visual, Behavioral & Cognitive Changes, provides insight into FTD and other atypical dementias and explains the science behind the conditions. Author…

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Duke Health Asking for People with FTD to Participate in Non-Invasive Study

AFTD does not “endorse” or “approve” any study or take funding to publicize research opportunities. We provide information and encourage you to consider whether this study seeking participants is a…

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Study Recommends New Approach to Paying for Dementia Care

A study recently published in Health Affairs highlights the high costs of dementia care and the need for a more comprehensive model of care. The authors of the study emphasize…

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Tips & Advice: Aggressive Behavior and FTD

One of FTD’s more troubling symptoms is the emergence of uncharacteristically aggressive behavior. Every case of FTD is different; and while aggression may not develop, it is still worth considering…

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FTD-Themed Play “Chasing Rainbows” Coming to Sacramento

On Saturday, March 4, playwright Bob Powers will perform his one-person show Chasing Rainbows, based on his real-life experience with his late husband, who had primary progressive aphasia. One hundred…

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