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Healing Through Sharing Our FTD Story
“We have to stop and remember that the person they were is not the person they are, and it’s going to keep changing. I hope we can get people to…
Bruce Willis Announcement Brings FTD Awareness to Millions Worldwide
The family of Bruce Willis announced via Instagram on February 16 that the beloved actor has been diagnosed with FTD. The statement, also published on AFTD’s website, was signed by…
AFTD News: Spring 2023, Vol. 20, Issue 1
In this issue: Bruce Willis Announcement Brings FTD Awareness to Millions Worldwide; L.A. Rams Coach Dons AFTD Cleats During Game; Penny Dacks Appears on Remember Me Podcast; Healing Through Sharing…
April’s Athlete of the Month: Chad Thomsen
Our April Charity Miles Athlete of the Month is Chad Thomsen from North Carolina. He runs in memory of his first wife, Roxanne, who passed away in 2009 at 41…
AFTD Webinar: Treatment of Behavioral Variant Frontotemporal Degeneration
Join Dr. Simon Ducharme, a neuropsychiatrist, researcher, and expert specializing in FTD, as he presents on the treatment of behavioral variant FTD (bvFTD). This webinar is designed specifically for primary…
Advocacy Update: AFTD Board Members and CEO Help BEYONDD Study Secure Partnership of New York State Sen. Cordell Cleare
AFTD CEO Susan L-J Dickinson and Board members Donald E. Newhouse and Kathy Newhouse Mele helped to secure the partnership of New York State Senator Cordell Cleare for a study…
Dr. Murray Grossman, 1952-2023
Murray Grossman, MDCM, EdD, an internationally recognized leader in FTD science and a founding member of AFTD’s Medical Advisory Council (MAC), died on April 4, the Penn Memory Center announced…
AFTD Volunteers Share FTD Insights with Being Patient Live Talk
AFTD volunteer Katie Brandt and AFTD Medical Advisory Council chair Brad Dickerson, MD, were featured in a recent edition of Being Patient Live Talk. Brandt and Dr. Dickerson spoke with…
Study Examines the Care Partner’s Perspective on bvFTD Symptoms
A study published in the medical journal Psychogeriatrics examines the perspective of care partners on symptoms of behavioral variant frontotemporal degeneration (bvFTD). One of bvFTD’s most common symptoms is anosognosia,…
Study Identifies Plasma Biomarkers That Can Discriminate Forms of FTD Caused by TDP-43 and Tau
A recent study by a team of researchers at the University of Pennsylvania has identified biomarkers that can be used to discriminate between forms of FTD caused by the abnormal…
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