What's New
AFTD Staff and Emma Heming Willis Commemorate FTD Week Resolution in Calif.
(pictured above, L-R: FTD advocate Wanda Smith, Calif. Assemblymember Brian Maienschein, AFTD CEO Susan L-J Dickinson, FTD advocate Emma Heming Willis, Calif. State Sen. Brian Jones) AFTD staff traveled to…
Session Videos Now Available from AFTD 2024 Education Conference
Videos from the AFTD 2024 Education Conference are now available on AFTD’s YouTube channel. Whether you were unable to join us in Houston or online, or simply want to watch a…
California’s First Frontotemporal Degeneration Awareness Resolution Passed at State Capitol by Assembly and Senate
Emma Heming Willis Joins The Association for Frontotemporal Degeneration at California’s Capitol to Mark Watershed Moment in Dementia Awareness SACRAMENTO, CA. – On Thursday, The Association for Frontotemporal Degeneration (AFTD)…
Passage Bio Highlights Promising Clinical Trial Progress in Quarterly Update
Biopharmaceutical company Passage Bio highlighted promising progress in its phase 1/2 clinical trial for a form of genetic FTD in a recent quarterly update. Passage Bio’s upliFT-D trial is evaluating…
Advancing Hope: AFTD Attends 2024 Target ALS Annual Meeting
AFTD attended the 2024 Target ALS Meeting on May 7-9 in Boston, Massachusetts. There were over 800 people who attended the meeting in-person or virtually. Attendees were comprised of scientific…
Help & Hope: The new FTD Disorders Registry Platform is Now Live!
The FTD Disorders Registry announced the launch of their updated platform at the AFTD 2024 Education Conference in Houston, TX. By joining the FTD Disorders Registry, you are counted as…
June 15, 2024: In-Person Meet & Greet in Newport News, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at the Grissom Library in Newport News (366 Deshazor Drive). RSVP by…
June 15, 2024: In-Person Meet & Greet in Richmond, Va.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at East End Branch of the Richmond Public Library (1200 N. 25th…
June 19, 2024: New York City Virtual Meet & Greet
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for New York City residents, taking place Wednesday, June 19, from 6:00…
Study Discovers How Variations in TMEM106B Gene Influence Risk and Severity of FTD
In a study published earlier this year in the journal Science Translational Medicine, researchers from Mayo Clinic share their discovery of the ways inherited variations in a specific gene can…
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