What's New
Advancing Hope: AFTD’s Director of Research Engagement Attends NORD Summit in Washington, DC
AFTD Director of Research Engagement Shana Dodge, PhD, attended the National Organization for Rare Disorders (NORD) Breakthrough Summit, held October 16 and 17 in Washington, D.C. NORD is an advocacy…
Study Evaluates Brain-Atrophy Rates in Genetic FTD Carriers
A study published in the journal Neurology evaluates the brain degeneration or atrophy rates of presymptomatic carriers of mutations that can cause genetic FTD. Determining the relative age at which…
December 16: In-Person Meet & Greet in Boulder, CO
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Boulder, Colorado on December 16, starting at 2 p.m. MT. Download…
AFTD Volunteer and Former FTD Care Partner Discusses Importance of Self-Care in Podcast Interview
Corey Esannason, a former AFTD Ambassador, emphasized the need for self-care for FTD care partners and shared her insights as a yoga practitioner, care partner, and AFTD volunteer in an…
Guest Feature: Heal the Heart, Hold Up the Truths, and Find a Way
The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by moments of happiness, love, and connection. The following essay and poems by Sandy…
Perspectives in FTD Research Webinar: Why PSP and CBS Clinical Trials Matter
Progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS) are FTD disorders that primarily affect movement and are sometimes called atypical parkinsonism. In this Perspectives in FTD Research Webinar, presented jointly…
Volunteer Update: Hosting an Information Table Event
Hosting an information table on behalf of AFTD gives our volunteers a perfect way to bring awareness to their hometowns. AFTD volunteers can use information tables to engage, educate, and…
Pilot Study Evaluates Virtual Coaching’s Ability to Help FTD Care Partners with Self-Care
A pilot study published in the journal Alzheimer’s & Dementia: Translational Research and Clinical Interventions tests if the remote support program “Virtual Caregiver Coach for You” (ViCCY) was effective in…
Emma Heming Willis Shares Insights from Her Family’s FTD Journey in Essay
In an essay published in Maria Shriver’s Sunday Paper, Emma Heming Willis shared some insights she has gathered while navigating the FTD journey following the diagnosis of her husband, the…
Dear HelpLine – Support for Veterans
Dear HelpLine, My loved one is a veteran. Do we qualify for any support? Navigating the Department of Veterans Affairs, and the benefits you or your loved one might be…
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