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Dear HelpLine: Dealing With Genetic Uncertainty
Dear HelpLine, Each time I visit home for the holidays and see firsthand how FTD has affected my parent, my anxiety increases. Is it normal to worry that other family…
AFTD and ADDF Extend Treat FTD Fund Program Through 2035
AFTD and the Alzheimer’s Drug Discovery Foundation (ADDF) have committed to extending the Treat FTD Fund program through 2035, providing an additional ten years of support to accelerate treatment development…
The Lived Experience of FTD: Grief on the FTD Journey
The following article was written by members of AFTD’s Persons with FTD Advisory Council, who work to ensure that the insights and voices of people living with FTD help guide…
Passage Bio Announces Hopeful Initial Data from Phase 1/2 Clinical Trial
Passage Bio released promising preliminary results from its phase 1/2 clinical trial evaluating an experimental treatment for FTD cases caused by a GRN genetic mutation (FTD-GRN). The “upliFT-D” trial is…
Tips & Advice: Navigating Apathy in FTD
A hallmark symptom of FTD, apathy can be particularly hard to deal with for persons diagnosed, care partners, and family members. Apathy manifests as an apparent loss of interest in…
Advancing Hope: AFTD hosts FTD Social at the Society for Neuroscience Annual Meeting
The Society for Neuroscience (SfN), with nearly 35,000 members in 95 countries, is the world’s largest professional organization for brain researchers. SfN’s annual meeting provides a forum for scientists from…
Editor Shares How Basketball Helps Him Bond with Friend Who Has PPA
Retired managing editor Lonny Cain of The Times (Ottawa, Ill.) shared in a recent article how basketball helps him communicate and continue to bond with his lifelong friend Randy, who…
“We’re Just Regular People with an Illness,” Dementia Advocate with FTD Writes in Essay
In an essay published by Inside Ageing, Bobby Redman, a retired behavioral psychologist living with FTD, discusses the results of a survey by Dementia Australia. According to the survey, nearly…
Volunteer Update: Hosting a Meet & Greet Event
By hosting a Meet & Greet on behalf of AFTD, volunteers can bring together people affected by FTD in their local area and neighboring communities to share resources and support…
Advancing Hope: AFTD Manager of Genetic Initiatives Attends National Society of Counselors Annual Education Conference
AFTD’ Manager of Genetic Initiatives Kim Jenny, MS, LCGC, attended the 2023 National Society of Genetic Counselors Annual Education Conference, which took place October 16-21. The conference kicked off with…
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