What's New
FDA Grants Breakthrough Therapy Designation to Experimental FTD Therapy
The U.S. Food and Drug Administration (FDA) has granted a “breakthrough therapy designation” to latozinemab, an experimental treatment for FTD caused by a GRN genetic mutation. The drug is being…
UK Researchers Discover How to Block Toxic Protein Associated with FTD and ALS
Researchers at the University of Sheffield have discovered how to prevent the production of toxic repeat proteins that cause the death of nerve cells in neurodegenerative diseases like FTD and…
Dear HelpLine: What to Look for When Considering Facility Care for a Person with FTD
Dear HelpLine, We have reached the difficult decision to look for long-term facility care for my sister, and I feel overwhelmed because I don’t know what to look for or…
“The Longest Goodbye”: Montana Woman Shares Family’s FTD Journey in Interview
Krista Payzant of Montana characterized FTD as a thief that “strips the person of who they are” in an interview published in November by the news station KRTV3. Sharing the…
February 26, 2024: In-Person Meet & Greet in Fresno, Calif.
Join and learn from others who understand the FTD journey at this AFTD Meet & Greet event, taking place in Fresno, California on Monday, February 26, starting at 6:00 p.m.…
NY State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry
New York State Senator Michelle Hinchey introduced a bill on January 3 to create a statewide FTD registry that would document diagnoses. Senate Bill S7874 would require healthcare providers in…
Guest Feature: Capturing Voices – Considerations When Writing YOUR Book
The grief caused by FTD is persistent, lasting well beyond the end of the FTD journey for family and friends. However, as author and support group volunteer Scott Rose shares in the…
Researcher Discusses Integrating Genetic Testing Into Routine FTD/ALS Care in Podcast Interview
Offering genetic testing to persons diagnosed with FTD/ALS disorders should be a routine part of clinical care, Laynie Dratch, ScM, CGC, of Penn Medicine, said in a December 2023 interview…
Perspectives in FTD Research Webinar: Gene Therapy for FTD — What Do I Need to Know?
In the last several years, new clinical trials have begun for drugs that can potentially slow or stop the progression of FTD caused by specific genes. Gene therapy and gene…
February 24, 2024: Virtual Meet & Greet for Delray Beach, Fla. Area
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in and around Delray Beach, Florida on Saturday, February 24,…
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