What's New
June 24, 2024: VA Caregiver Support Annual Summit
AFTD staff will have an information table during the annual summit of the VA New Jersey Health Care System in East Orange. The event, which this year is titled “Beyond…
Aprinoia Therapeutics Receives Fast Track Designation for PET Tracer for PSP Diagnosis
Biopharmaceutical company Aprionoia Therapeutics announced that it has received an FDA Fast Track Designation for an imaging tracer used to diagnose progressive supranuclear palsy (PSP), an FTD disorder that primarily…
Dear HelpLine – Support for Young Adults
Dear HelpLine, My mom was diagnosed with FTD and I’m looking to connect with other young adults caring for a parent with FTD. Without support, I am overwhelmed and feel…
Advancing Hope: AFTD Joins National Institutes of Health AMP ALS Initiative as Partner
AFTD is joining fellow nonprofits, biopharmaceutical companies, and the U.S. Food and Drug Administration (FDA) as partners in the Accelerating Medicines Partnership for ALS (AMP ALS) initiative. AFTD’s participation in…
New York FTD Registry Bill Passes State Senate
A bill establishing a registry of FTD diagnoses in New York State unanimously passed the state Senate on June 5. Sponsored by Sen. Michelle Hinchey, Senate Bill 7874 requires healthcare…
AFTD Board Member Kristin Holloway Tells Her FTD Story to Self Magazine
AFTD Board member Kristin Holloway shared her experiences as a care partner for her husband, Lee, in an article published by Self magazine on May 17. Holloway began noticing alarming…
July 15, 2024: Virtual Meet & Greet for Pittsburgh, Pa. Area
Join and learn from others who understand the FTD journey at this virtual AFTD Meet & Greet event for people in the Pittsburgh, Pa. area on Monday, July 15, beginning…
AFTD Staff and Emma Heming Willis Commemorate FTD Week Resolution in Calif.
(pictured above, L-R: FTD advocate Wanda Smith, Calif. Assemblymember Brian Maienschein, AFTD CEO Susan L-J Dickinson, FTD advocate Emma Heming Willis, Calif. State Sen. Brian Jones) AFTD staff traveled to…
Session Videos Now Available from AFTD 2024 Education Conference
Videos from the AFTD 2024 Education Conference are now available on AFTD’s YouTube channel. Whether you were unable to join us in Houston or online, or simply want to watch a…
California’s First Frontotemporal Degeneration Awareness Resolution Passed at State Capitol by Assembly and Senate
Emma Heming Willis Joins The Association for Frontotemporal Degeneration at California’s Capitol to Mark Watershed Moment in Dementia Awareness SACRAMENTO, CA. – On Thursday, The Association for Frontotemporal Degeneration (AFTD)…
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