Welcome / Advances in Understanding FTD

After AFTD Board Chair Gail Andersen introduces attendees to the AFTD Education Conference, Amy Shives, a member of AFTD’s ThinkTank for persons diagnosed, provides the official welcome. Immediately following is the first session of the day, which presents the latest developments in our understanding of FTD.

Presenters:
Mario Mendez, MD, PhD (presentation)
Jamie Fong, CGC (presentation)

 

 

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Perspectives on Research

Working to advance FTD research is one of the core aspects of AFTD’s mission. This session offers perspectives from everyone involved in research, from persons diagnosed and their care partners to the researchers who interact with them and those involved in analyzing the acquired data.

Presenters:
Kimiko Domoto-Reilly, MD (presentation)
Elvira Jimenez, PhD (presentation)
Dianna K.H. Wheaton, MS, PhD, CHES (presentation)
Anne and Ed Fargusson

 

 

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Perspectives on Care and Support

Everyone who finds themselves on the FTD journey need support. Panelists in this session provide their own experiences on FTD care and support from multiple perspectives: a person diagnosed, a former caregiver, a support group leader and a social worker.

Presenters:
Mary Guerriero Austrom, PhD (presentation)
Mary O’Hara, LCSW (presentation)
Laurie Scherrer (presentation)
Chuck Anastasia (presentation)

 

 

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Providing Help, Advancing Hope: AFTD’s 2019-2022 Strategic Plan

AFTD’s work over the next three years will be guided by our new Strategic Plan. Susan L-J Dickinson, AFTD’s CEO, goes over the highlights of our ambitious plan in this brief talk. (presentation)

 

 

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Conference Keynote Address: Martha Madison

Actor Martha Madison (Days of Our Lives) talks about her mother, Barbara, diagnosed with bvFTD in 2008 at age 56, and how she and her family have found help and shared hope in the intervening years.

 

 

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Additional Audio/Video:

Breakout Sessions
What Are Your Lifelines?