When Stephanie McLain’s mom was diagnosed with FTD, her family went in search of information and resources to help them understand the disease and better navigate the FTD journey. It was through this search that she discovered AFTD, and it wasn’t long before Stephanie raised her hand to volunteer. “I volunteer because, when my mom was diagnosed, AFTD was there for us when we were looking for answers. I want to help others in the same way we were helped,” she shares.

Beginning in 2012, Stephanie got involved in organizing fundraising events and campaigns to raise critical financial support to fuel AFTD’s work. Then, in 2017, she took on the role of support group volunteer, walking alongside others in the Austin, Texas area who are on the FTD journey. “There are many satisfying things about volunteering with AFTD, but I think the most rewarding is supporting caregivers of those with the disease,” she says. Ten years from when she first got involved, Stephanie continues to help other families impacted by FTD through co-facilitating her support group along with Barbara Loewy, and fundraising in support of AFTD’s mission.

AFTD is immensely grateful to Stephanie for her dedication to the cause, and the vital support she provides to others who are affected by FTD. If you’re interested in becoming a part of our national volunteer network, please visit our website to learn more, and fill out our volunteer form to get started.