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Personal Stories

Giving a Hand to Our Helping Hands!

AFTD Volunteer Nanci Anderson As care partner for Gary, her husband of 38 years, AFTD Volunteer Nanci…

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Supporting Families from the Beginning

“For so long we wondered what was going on with Mom,” says Amber Dickson. Her mother’s behavior…

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Spotlight on…David Pfeifer, AFTD Board of Directors

After experiencing FTD firsthand as a care partner for his wife Cathy, David Pfeifer felt compelled to…

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Marc and Gretchen Toles

The Beach Walk, by Marc Toles

The summer of 2007 was proving to be one of the most difficult times in our marriage. The…

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Flooded with Sound, by Tim Ramsey

We first noticed Dad’s hearing loss when he was in his early sixties. He would ask us…

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Poem, by Lori Ruhlman

One of the difficult aspects of FTD is that the loved one is still physically present. In…

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Frontotemporal Dementia Sucks, by Robin Albright

A wife describes the heartbreak of learning of her husband’s diagnosis and the struggles of managing the…

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Reflecting on Hope, by Robin Albright

While having a particularly bad day, Robin Albright chooses to see that there is hope. Click here…

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Through the Eyes of a Caretaker

In this essay, a husband describes his path to accepting his wife’s diagnosis. Click here to read.

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Caregiver, by Maureen Walsh

This poem describes one caregiver’s experience with the toll caregiving exacts.

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