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Help & Hope
Dear HelpLine: Long-Distance Care Partners
Dear HelpLine, My dad was recently diagnosed with FTD. I’m devastated by the diagnosis, but I live…
Advancing Hope: FTD Disorders Registry Deploying Upgraded Platform Under New Director
The FTD Disorders Registry is a powerful tool in the effort to discover treatments and a cure…
Advancing Hope: AFTD Holds Inaugural Research Roundtable Conference to Convene Stakeholders in FTD Research
The FTD Research Roundtable is a new initiative at AFTD to enable discussion and shared problem-solving across…
Volunteer Update: Take an Active Role in Advancing FTD Science by Participating in Research
FTD science has come far in the 21 years since AFTD began its mission, with scientists closer…
Help & Support: Sleep Issues in FTD
Changes to sleep routines are a common challenge for the person living with FTD and their care…
Advancing Hope: AFTD Staff Present at the 2023 Alzheimer’s Association International Conference
Senior Director of Scientific Initiatives Penny Dacks, PhD, and Director of Research and Grants Debra Niehoff, PhD,…
Guest Feature: My Ohana – Reflecting on The Close Bonds We Build on the FTD Journey
FTD symptoms and the stigma attached can make navigating the disease an isolating experience for people diagnosed,…
Advancing Hope: AFTD’s Director of Research Engagement Attends Cure VCP Conference
Shana Dodge, PhD, AFTD’s Director of Research Engagement, spoke at the 2023 Cure VCP Connections Conference, held…
Guest Feature: That Picture, That Movie, That Song – Connecting with My Dad Beyond FTD
FTD can distort one’s personality and behavior in unpredictable and upsetting ways, and it can be hard…
Advocacy Update: AFTD Ambassadors Offer Insights at July NAPA Meeting
At the most recent meeting of the National Alzheimer’s Project Act (NAPA) Advisory Council, AFTD Ambassadors Katie Zenger and Terry…
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