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Help & Hope
Advancing Hope: AFTD Holds 2023 Holloway Summit Meeting on Biomarkers for FTD
The second annual AFTD Holloway Summit, focused on biomarkers for FTD, was held from November 30 to…
Dear HelpLine: Dealing With Genetic Uncertainty
Dear HelpLine, Each time I visit home for the holidays and see firsthand how FTD has affected…
The Lived Experience of FTD: Grief on the FTD Journey
The following article was written by members of AFTD’s Persons with FTD Advisory Council, who work to…
Tips & Advice: Navigating Apathy in FTD
A hallmark symptom of FTD, apathy can be particularly hard to deal with for persons diagnosed, care…
Advancing Hope: AFTD hosts FTD Social at the Society for Neuroscience Annual Meeting
The Society for Neuroscience (SfN), with nearly 35,000 members in 95 countries, is the world’s largest professional…
Volunteer Update: Hosting a Meet & Greet Event
By hosting a Meet & Greet on behalf of AFTD, volunteers can bring together people affected by…
Advancing Hope: AFTD Manager of Genetic Initiatives Attends National Society of Counselors Annual Education Conference
AFTD’ Manager of Genetic Initiatives Kim Jenny, MS, LCGC, attended the 2023 National Society of Genetic Counselors…
Dear HelpLine: Connecting During Facility Visits
Dear HelpLine, My mom has FTD and lives in a facility, and I am struggling to find…
Advocacy Update: Federal Dementia Legislation Scheduled to Expire in 2025
The scientific understanding of FTD has increased more in the past 10 years than in the previous…
Advancing Hope: AFTD’s Director of Research Engagement Attends NORD Summit in Washington, DC
AFTD Director of Research Engagement Shana Dodge, PhD, attended the National Organization for Rare Disorders (NORD) Breakthrough…
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