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Help & Hope
Advancing Hope: AFTD Manager of Genetic Initiatives Attends National Society of Counselors Annual Education Conference
AFTD’ Manager of Genetic Initiatives Kim Jenny, MS, LCGC, attended the 2023 National Society of Genetic Counselors…
Dear HelpLine: Connecting During Facility Visits
Dear HelpLine, My mom has FTD and lives in a facility, and I am struggling to find…
Advocacy Update: Federal Dementia Legislation Scheduled to Expire in 2025
The scientific understanding of FTD has increased more in the past 10 years than in the previous…
Advancing Hope: AFTD’s Director of Research Engagement Attends NORD Summit in Washington, DC
AFTD Director of Research Engagement Shana Dodge, PhD, attended the National Organization for Rare Disorders (NORD) Breakthrough…
Guest Feature: Heal the Heart, Hold Up the Truths, and Find a Way
The FTD journey an emotional experience filled with grief and frustration, but it is one punctuated by…
Volunteer Update: Hosting an Information Table Event
Hosting an information table on behalf of AFTD gives our volunteers a perfect way to bring awareness…
Dear HelpLine – Support for Veterans
Dear HelpLine, My loved one is a veteran. Do we qualify for any support? Navigating the Department…
AFTD Update: Updated Digital Resources for FTD & Genetics
The FTD & Genetics section of AFTD’s website has been newly updated to help families better understand…
The Lived Experience of FTD: Anosognosia
The following article was written by Kevin Rhodes, a member of AFTD’s Persons with FTD Advisory Council….
Volunteer Update: Giving Purpose to the Pain – Becoming an AFTD Ambassador and FTD Advocate
AFTD Ambassadors know the power of a single story and the healing potential of finding others who…
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