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Dear HelpLine: Brain Donation

Dear HelpLine, How do we learn more and start the process of arranging a brain donation for…

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Advancing Hope: AFTD and Registry Staff attend Neurology Meeting

AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April…

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The Lived Experience of FTD: Frustrations of FTD

The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…

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Tips & Advice: Roaming vs. Wandering

In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving…

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Dear HelpLine: Hyperorality

Dear HelpLine, My loved one is focused on eating sweets like cookies and candy bars, which is…

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Guest Feature: Finding Support and Understanding on the Go with the Hidden Disabilities Sunflower

For persons diagnosed with FTD, simply existing in public can be challenging. FTD’s symptoms can cause difficulties…

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The Lived Experience of FTD: Driving and FTD

The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…

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Dear HelpLine: Looking for Support Options

Dear HelpLine, Our family is looking for ways to connect with other FTD care partners for support….

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Advocacy Update: Rare Disease Day and FTD

Rare Disease Day, which occurs annually on the last day of February, was established by the European…

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Guest Feature: Somebody’s Sister

FTD is an aggressive disease that disrupts people’s lives and relationships, with families often unsure what they…

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