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Susan Dickinson

A Message from AFTD’s CEO

I hope that this finds you and your family safe and connected during these last weeks of…

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“Zoey’s Extraordinary Playlist” Brings FTD Awareness to National TV

Zoey’s Extraordinary Playlist, which concluded its first season on NBC in May, is helping to shine a…

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COVID-19 and FTD Research: Challenges and Silver Linings

The COVID-19 pandemic has brought significant new challenges for families facing FTD, and it has also brought…

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Spotlight on…Aisha Adkins, FTD Caregiver

Aisha Adkins never thought she would find herself in a caregiver role so early in life, but…

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Study Reveals How Tau Protein Ensnares Other Chemicals to Form Toxic Tangles

A new study has revealed dozens of previously undiscovered proteins believed to bundle with tau to form…

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Wisconsin Family Shares PPA Journey, Adjusting to COVID-19

Since Wayne Zorn was diagnosed with primary progressive aphasia (PPA) six years ago, he and his wife…

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FTD Caregiving in a Pandemic

Dear Friends, I hope you and your loved ones are staying safe and healthy during this still…

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Revolutionary Computer Scientist Russell Kirsch Dies After Journey with FTD

Russell Kirsch, a computer scientist known for scanning the first digital image, has died after a nearly…

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Mother Impacted by FTD Writes Children’s Book About Dementia

A mother of three whose father is living with FTD has launched pre-sales of a children’s book…

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Cast of “Zoey’s Extraordinary Playlist” Talks About the Impact of the First Season

The entire cast of Zoey’s Extraordinary Playlist, including creator Austin Winsberg, gathered to talk about the experience…

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