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Volunteer Update: Giving Purpose to the Pain – Becoming an AFTD Ambassador and FTD Advocate
AFTD Ambassadors know the power of a single story and the healing potential of finding others who…
Dear HelpLine: Long-Distance Care Partners
Dear HelpLine, My dad was recently diagnosed with FTD. I’m devastated by the diagnosis, but I live…
WebMD Staff Writer Shares His Experience as an ALLFTD Participant
WebMD staff writer Damian McNamara, MA, shared his experiences as an ALLFTD participant in a post published…
AviadoBio Begins Clinical Trial to Evaluate AVB-101 for Treatment of FTD
Today, AviadoBio announced the start of its Phase 1/2 clinical trial to evaluate AVB-101 as a one-time…
Advancing Hope: FTD Disorders Registry Deploying Upgraded Platform Under New Director
The FTD Disorders Registry is a powerful tool in the effort to discover treatments and a cure…
Case Report Co-Authored by AFTD Board Member Highlights Varying Presentations of FTD-GRN
A case report recently published in the journal Clinical Parkinsonism & Related Disorders highlights how even between…
AFTD Webinar: Answering Questions and Providing Support — A Q&A with AFTD HelpLine Staff
Understanding and managing FTD can be overwhelming for those living with a diagnosis, their care partners, and…
U.S. Rep. Jennifer Wexton Announces Progressive Supranuclear Palsy Diagnosis
Representative Jennifer Wexton of Virginia announced last week that she would not be seeking re-election after receiving…
World FTD Awareness Week Guest Feature: Advocating for the Future, Advocating for Love – Insights From a Lifelong FTD Journey
Despite the grief, frustration, and sadness that can affect families on the FTD journey, many have channeled…
Emma Heming Willis and AFTD CEO Susan L-J Dickinson Interviewed on NBC’s “Today Show”
Emma Heming Willis gave updates on her family’s FTD journey and discussed the disease alongside AFTD CEO…