What's New
Events
Familial Conference: Uncovering the Genetics of FTD/ALS
The Penn FTD Center has opened registration for the fourth annual familial conference , Uncovering the Genetics of FTD/ALS, on February 21, 2024, from 3:00-6:00 PM. This virtual event has been designed to…
Tucson, Ariz. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Tucson, Arizona on Tuesday, February 20, starting at 1:00 p.m. MT.…
2024 Austin Marathon
Join select AFTD staff and members of the local community at the 2024 Austin Marathon as we bring greater FTD awareness to the surrounding Austin area and raise funds to…
Meet AFTD’s West Virginia Ambassador
Meet West Virginia AFTD Ambassador Debbie Elkins at the Huntington Mall in Barboursville, W.V., from 11 a.m. – 2 p.m. ET on Saturday, February 17!
Gene Therapy for FTD: What Do I Need to Know?
In the last several years, new clinical trials have begun for drugs that can potentially slow or stop the progression of FTD caused by specific genes. Gene therapy and gene…
Starting Fresh 2024: Empowering Caregivers Conference
AFTD is co-sponsoring Starting Fresh 2024: Empowering Caregivers, a caregivers conference held by the Alzheimer’s Association Capital of Texas Chapter. AFTD Ambassador Susan Eissler will have an information table at…
Leicester, Mass. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Leicester, Massachusetts on Saturday, January 6, starting at 10:30 a.m. ET.…
Boulder, CO — In-Person Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Boulder, Colorado on December 16, starting at 2 p.m. MT. Download…
Approaching a Cure: FTD Genetics and Clinical Trials
The landscape of FTD research has evolved tremendously over the last decade. FTD-causing genetic variants, and the mechanisms they disturb, offer a window to developing disease-modifying medications that target those…
Tucson, Ariz. Meet & Greet
AFTD Volunteer Grace McFarland will be hosting a Meet & Greet in the Story Room at the Flowing Wells Library in Tucson, Arizona. Join Grace to meet others with lived…
Jersey City, New Jersey, Meet & Greet
AFTD Ambassador Sandra Gonzalez-Morett and Volunteer Veronica Wolfe will be hosting a Meet & Greet at Hudson Hall in Jersey City. Join Sandra, Veronica, and others with lived experience of…
Why PSP and CBS Clinical Trials Matter: A Perspectives in FTD Research Webinar
Progressive supranuclear palsy (PSP) and corticobasal syndrome (CBS) are FTD disorders that primarily affect movement and are sometimes called atypical parkinsonism. In this Perspectives in FTD Research Webinar, presented jointly…
Penn FTD Center Annual Caregiver Conference
The Penn FTD Center’s Annual Caregiver Conference is for those diagnosed with FTD, and their caregivers, family, and friends to access information and support. With presentations from leading experts in…
Pedacito de Carne at the 2023 Montclair Film Festival
Join filmmakers Diana Gonzalez-Morett, Akilah “AK” Walker, and AFTD Ambassador Sandra Gonzalez-Morett at the 2023 Montclair Film Festival this Saturday to share the lived experience of FTD and raise awareness…
AFTD Healthcare Professional Education Webinar: Grief, Loss, and Hope: –Helping Families Living with FTD
FTD is the most common dementia for people under 60, and often occurs when there are teens or young adults still at home. An FTD diagnosis can bring feelings of…
12th Annual Caregiver Conference
AFTD volunteer Cheryl Garvey will be sharing FTD educational and awareness materials at the 12th Annual Caregiver Conference at the Richland Community Center in Washington State. Author, motivational speaker, and…
AFTD’s 2023 Driving Hope Golf Tournament (NY)
Help support AFTD’s mission, get in 18 holes of golf on an exclusive private course, participate in a tennis tournament, and spread FTD awareness by joining AFTD’s 2023 Driving Hope…
Virtual Meet & Greet for Syracuse, New York Area
AFTD Volunteer Molly Secrest is interested in helping to bring FTD awareness and resources to the Syracuse, New York area. More information about an upcoming new virtual support group in…
AFTD Educational Webinar: Answering Questions and Providing Support — A Q&A with AFTD HelpLine Staff
Understanding and managing FTD can be overwhelming for those living with a diagnosis, their care partners, and healthcare professionals. The AFTD HelpLine is here to provide support. Last year, HelpLine…
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