Clinical Issues (1:15 p.m.)

Zarządzanie wariantem behawioralnym FTD
Chuang-Kuo Wu, MD, PhD
Marianne Sanders, RN
Amy i George Shives
Jill Shapira, PhD, RN, moderator

Explore behavioral variant FTD from four distinct and complementary perspectives – from the clinical
perspective, a care-and-support perspective, and from a person diagnosed and care partner.

Leczenie pierwotnej postępującej afazji
Ahmad Sajjadi, MD
Maura Silverman, MS, CCC/SLP
Tracey Lind i Emily Ingalls
Mary O'Hara, koordynatorka

Explore PPA from four distinct and complementary perspectives – from the clinical perspective, a care-and support perspective, and from a person diagnosed and care partner.

Zarządzanie ALS/FTD i zaburzeniami ruchu
Gabriel Leger, lekarz medycyny
Jamie Fong, CGC
dr Miki Paul
Doktor Debra Niehoff, koordynatorka

Poznaj fizyczne i poznawcze wyzwania związane z ALS/FTD, postępującym porażeniem nadjądrowym i zwyrodnieniem korowo-podstawnym z perspektywy klinicznej, genetycznej i opiekuńczej.

Care Strategies (2:50 p.m.)

Lekarz uważa, że to FTD. Co teraz?
Christy Turner, CDP, CDCM, CCSI
Marianne Sanders, RN

For those who are facing a new diagnosis, this session will help you understand FTD and start planning for care.

Rozwój zespołów i narzędzi komunikacyjnych
Maura Silverman, MS, CCC/SLP

Having PPA does not mean you have nothing to say. This session will focus on finding alternative means of communicating when language is lost.

Opracowywanie strategii środowiskowych i behawioralnych
Jill Shapira, PhD, RN, Sue Hirsch, MA, and Sandi Grow, RN, AFTD Partners in FTD Care Advisors

This session will demonstrate how to use a problem-solving approach to develop creative and individualized strategies to address challenging behaviors due to FTD.

Strata i żal w FTD
Bridget Moran-McCabe, MPH, AFTD
Elaine Rose, wolontariuszka AFTD

Doświadczenie straty i żalu jest skomplikowane. Podczas tej sesji omówione zostanie radzenie sobie z tym wyjątkowym i osobistym doświadczeniem.

Adaptacja do FTD: dyskusja dla osób cierpiących na FTD
Matt Sharp, MSS, AFTD
Amy Shives, lekarz medycyny

This session will feature a panel of people living with FTD discussing how to compensate and overcome challenges in daily life. This session is led by and is for people living with the disease. Any care partners who attend will be asked to listen rather than speak.

Open Q&A and Networking (4:00 p.m.)

Forum Młodych Dorosłych
Gabriel Leger, lekarz medycyny
Jamie Fong, CGC
Elivra Jimenez, PhD
Mary O’Hara, LCSW, facilitator

If you’re in your 20’s or 30’s and have a family member diagnosed with FTD, you’re bound to have questions. Here’s an opportunity to interact with experts as well as peers with similar concerns.

Forum Partnerów Opieki
Chuang-Kuo Wu, MD, PhD
Doktor Mary Austrom
Maura Silverman, MS, CCC/SLP
Jill Shapira, PhD, RN, moderator

There’s never enough time to talk with professionals who have expertise in FTD. This session offers care partners an additional opportunity to ask your questions and hear the concerns of peers.

Forum dla osób cierpiących na FTD
Lek. Kimiko Domoto-Reilly
Ahmad Sajjadi, MD
Marianne Sanders, RN
Matt Sharp, MSS, moderator

Come ask professional FTD experts your questions. This session offers people living with a diagnosis an opportunity to meet with medical, research and dementia experts to discuss questions and care needs.

Współpraca z AFTD dla dostawców usług opieki zdrowotnej
Sharon Denny, MA, facilitator

Learn about how AFTD can support your work with people with FTD and their families, and join us to continue to increase awareness of FTD, shorten time to diagnosis and improve the quality of care available.

Znajdź pomoc, podziel się nadzieją: siła opowiadania historii w mediach społecznościowych
Lauren Gauthier and Bridget Graham, facilitators

Join AFTD’s Online Community Coordinator and Special Events Manager to explore how you can leverage social media to increase awareness and understanding of FTD.