AFTD Volunteer Secures 3 FTD Awareness Week Proclamations in Ohio
Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith presented on September 4th at a public meeting. George feels strongly about advocating for FTD awareness because of his own circuitous diagnosis journey. “It took…
Read MoreAdvancing Hope: AFTD Hosts Industry Advisory Panel
On August 8 and 9, AFTD hosted an industry advisory panel in which a group of people whose lives have been touched by FTD shared their experiences and perspectives with companies working on potential FTD treatments. The panel included people diagnosed with FTD, current and former care partners, and biological family members of people with…
Read MoreGuest Feature: One Woman’s Journey – from Getting Diagnosed to Attempting Suicide to Embracing Life
September is Suicide Prevention Month. Below, Deb Jobe, a member of AFTD’s Persons with FTD Advisory Council, courageously shares the story of her suicide attempt following an FTD diagnosis, and how she returned from wanting to end her life to fully embracing it. As I sit here in my backyard feeling the sun’s warmth, watching…
Read MoreOctober 4, 2024: In-Person Meet & Greet in Midlothian, VA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Midlothian, Virginia, near Richmond, hosted by AFTD volunteer Carrie Edwards. The event will take place in Community Room of the Midlothian Library (100 Millworks Crossing). RSVP for this event by emailing cae.aftd@gmail.com. You can also download…
Read MoreAFTD Webinar: Care Partner Learning Series — Navigating Behavioral Variant FTD Symptoms
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and challenging for care partners, family members, and friends. So, learning about and understanding these symptoms can help care partners approach behaviors and support the person…
Read MoreMedical Technology CEO Discusses Using EEG to Differentiate FTD and Alzheimer’s
In an interview with Neurology Live, Advanced Brain Monitoring CEO Chris Berka shares insights from a pilot study that found how electroencephalography (EEG) can be used to differentiate between FTD, Alzheimer’s disease, and Lewy body dementia (LBD). Berka was one of many presenters at the 2024 Alzheimer’s Association International Conference whose work featured FTD. In…
Read MoreLong Island Alzheimer’s & Dementia Center Family Caregiver Appreciation Day
AFTD Ambassador Jackie Shapiro will be hosting an information table at the 2024 Long Island Alzheimer’s & Dementia Center Family Caregiver Appreciation Day on Saturday, October 26th from 11:30 AM – 2:30 PM ET. This supportive and informative program offers resources and understanding to care partners for people with FTD and other dementias, and features exhibitors and speakers…
Read MoreA Conversation with Juan Chavez, MD, of Passage Bio
AFTD recently spoke with Passage Bio Vice President of Clinical Development Juan Chavez, MD, about the company’s work to develop a therapy addressing FTD. Here, Dr. Chavez shares where he finds encouragement about today’s research landscape and how the FTD community can come together to further therapeutic development. What approach is your company using to…
Read MoreAcurastem Receives CIRM Grant for Targeted Therapeutic Program for ALS/FTD
Biotechnology company AcuraStem announced that it has received a $4 million grant from the California Institute for Regenerative Medicine (CIRM) for its targeted therapeutic program for ALS and FTD. The funding will support the company’s program focused on the UNC13A gene, which plays a crucial role in the progression of ALS and FTD. AcuraStem is…
Read MoreDear HelpLine: Social Security Benefits for People with FTD
Dear HelpLine, My dad is 55 and had to leave his job after he was diagnosed with FTD. Are there Social Security benefits that we are eligible for? As a young-onset form of dementia that typically strikes during the prime earning years, FTD often has a significant impact on a family’s financial situation. The economic…
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