The Association for Frontotemporal Degeneration

AFTD Ambassador Spencer Cline and his future brother-in-law Paul are biking across America from Astoria, Oregon to Charleston, South Carolina to help support AFTD's mission and spread Help and Hope.

Spencer & Paul's Bike Across America for AFTD

Donate to Spencer & Paul's Fundraiser

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

AFTD Brand Influencer Discusses Commitment to Caring

AFTD Brand Influencer Nicole Petrie shared her family’s FTD journey with host Lisa Opie on the podcast Miss Represented earlier this year. Petrie is a model, activist, and entrepreneur, and…

Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy

A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset dementias (YODs) like FTD in the Brescia province of Italy. As highlighted by…

Image: AFTD Ambassador Debbie Elkins shares her story on podcast.

AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast

AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the podcast All Home Care Matters in July to discuss the changed nature of…

Interactive Map Simplifies Search for Help on New AFTD “Find Support” Page

AFTD has just launched a new page designed to simplify your search for answers. We added an FTD Support Group and Diagnostic Center Locator, which includes a map that allows…

AFTD Grant Recipient Discusses Gene Therapy for FTD-GRN on Canadian TV

In an interview with the Canadian Broadcasting Corporation, Dr. Simon Ducharme of McGill University in Montreal discussed his recent administration of an experimental gene therapy to mitigate the progression of…

AFTD Volunteers showing off their proclamations!

AFTD Volunteers Achieve FTD Awareness Week in 5 More States

In recent weeks, AFTD volunteers have successfully lobbied legislators to declare September 22-29, 2024, as FTD Awareness Week in Maryland, Ohio, Oklahoma, Tennessee, and West Virginia. They join New York,…

Dear HelpLine: Transitioning to Facility Care

Dear HelpLine, We have just made the difficult decision to move my mom into facility care not far from home. We are all new to this, what can we expect…

AFTD, Penn FTD Center, CLRI logos. Text: Welcome FTD CRLI Research Ambassador Program, June 2024.

Advancing Hope: AFTD and University of Pennsylvania Host FTD Workshop

On June 11, 2024, AFTD collaborated with the University of Pennsylvania Frontotemporal Degeneration (FTD) Center on the FTD Clinical Research Learning Institute (CRLI) Research Ambassador Program, a one-day virtual FTD…

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