AFTD Now Offering CME Credits to Healthcare Professional Webinar Attendees
As part of an ongoing organizational effort to provide vital FTD education to healthcare professionals, AFTD held its first webinar offering continuing medical education (CME) credits on February 22. Guest speaker Howard Rosen, MD, of the University of California, San Francisco offered insight on the differences between behavioral variant FTD (bvFTD) and other forms of…
Read MoreSpotlight on… Julie Kelly, AFTD Board of Directors
Growing up, Julie Kelly was like a third sister to her best friends, identical twins Cathy Pfeifer and Jeannette Ekstrand. The trio went to high school together in suburban Chicago. While attending Indiana University for her BS in finance, Kelly lived with Pfeifer during her first two years, and the two frequently roadtripped to Miami…
Read MoreHealing Through Sharing Our FTD Story
“We have to stop and remember that the person they were is not the person they are, and it’s going to keep changing. I hope we can get people to look at the dementias differently.” – Dawn O’Gara, former FTD care partner and current AFTD volunteer Dawn O’Gara’s father, Jim Tobin, was a well-respected veteran…
Read MoreBruce Willis Announcement Brings FTD Awareness to Millions Worldwide
The family of Bruce Willis announced via Instagram on February 16 that the beloved actor has been diagnosed with FTD. The statement, also published on AFTD’s website, was signed by members of Willis’s family: his wife, Emma; his ex-wife, Demi Moore, and their daughters Rumer, Scout, and Tallulah; and Mabel and Evelyn, the two daughters…
Read MoreAFTD News: Spring 2023, Vol. 20, Issue 1
In this issue: Bruce Willis Announcement Brings FTD Awareness to Millions Worldwide; L.A. Rams Coach Dons AFTD Cleats During Game; Penny Dacks Appears on Remember Me Podcast; Healing Through Sharing Our FTD Story; Spotlight on… Julie Kelly, AFTD Board of Directors; Online and In-Person Registration Open for 2023 AFTD Education Conference; AFTD Now Offering CME…
Read MoreApril’s Athlete of the Month: Chad Thomsen
Our April Charity Miles Athlete of the Month is Chad Thomsen from North Carolina. He runs in memory of his first wife, Roxanne, who passed away in 2009 at 41 from FTD. He learned about the Charity Miles app from AFTD promotions and uses it when he goes cycling. Chad wants to support AFTD to…
Read MoreAFTD Webinar: Treatment of Behavioral Variant Frontotemporal Degeneration
Join Dr. Simon Ducharme, a neuropsychiatrist, researcher, and expert specializing in FTD, as he presents on the treatment of behavioral variant FTD (bvFTD). This webinar is designed specifically for primary care physicians, neurologists, psychiatrists, geriatricians and other clinical specialists. In this webinar, Dr. Ducharme discusses treatment considerations for bvFTD symptoms as well as non-pharmacological approaches…
Read MoreAdvocacy Update: AFTD Board Members and CEO Help BEYONDD Study Secure Partnership of New York State Sen. Cordell Cleare
AFTD CEO Susan L-J Dickinson and Board members Donald E. Newhouse and Kathy Newhouse Mele helped to secure the partnership of New York State Senator Cordell Cleare for a study aiming to address the under-inclusion of diverse groups (such as the Black and Latinx communities) in research and clinical care for young-onset dementias like FTD.…
Read MoreVCP Connections Conference – 2023 Family Gathering
Join Cure VCP Disease in Las Vegas for an awesome time of connection! The conference will be focused on patient engagement and interactions with other participants. The beginning of the conference will include scientific sessions, but the focus of the event is on patient and care partner topics and engagements as well as introducing new…
Read MoreDr. Murray Grossman, 1952-2023
Murray Grossman, MDCM, EdD, an internationally recognized leader in FTD science and a founding member of AFTD’s Medical Advisory Council (MAC), died on April 4, the Penn Memory Center announced on April 10. Dr. Grossman was 71. A neurology professor at the University of Pennsylvania for over three decades, Dr. Grossman played a crucial role…
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