Regional, Virtual Meet & Greet for Idaho, Oregon, and Washington for Parents Caring for a Spouse With FTD
Join and learn from others who understand the FTD journey at this virtual, regional AFTD Meet & Greet event for parents whose spouses are diagnosed with FTD in Idaho, Oregon, and Washington, hosted by AFTD volunteer Julie Motschenbacher, on April 28, 2025. RSVP by emailing Julie at m13family at gmail.com. We encourage you to download this flyer and…
Read MoreBridging the Gap Between FTD and ALS
FTD lies at the genetic and symptomatic intersection of a number of neurodegenerative disorders. One of them is amyotrophic lateral sclerosis (ALS). A variant in the C9orf72 gene is the most common cause of both genetic FTD and ALS, and both FTD and ALS can present within the same family, or even in the same…
Read MoreReview Article Explores Lived Experiences of Ceasing Driving Due to Young-Onset Dementia
A review article published in the journal BMC Geriatrics explores and summarizes the lived experiences of ceasing driving due to young-onset dementias like FTD, finding that families are often left to navigate the associated challenges on their own. Driving Often Cessation Occurs During Peak of Family Life and Career Dementias like FTD are progressive conditions…
Read MoreHelp & Hope: Join AFTD’s 2025 Education Conference Via Zoom on May 2
The 2025 AFTD Education Conference will be livestreamed via Zoom on May 2, offering a valuable opportunity to connect with others who understand, learn from FTD experts, and engage with AFTD’s community. As in the past few years, the 2025 Education Conference will be a hybrid event: attendees can either join us online or in…
Read MoreThe 20th Annual GFS Memorial Golf Outing
The 20th annual GFS Memorial Golf Outing will be held on August 2, 2025 at the Lost Nation Golf Course in Willoughby, OH. The event will feature a shotgun start, four person scramble format, closest to the pin and most accurate drive contests, door prizes, a raffle and steak dinner. All proceeds to benefit AFTD’s…
Read More“Inside Edition” Highlights Upcoming Documentary About a Family’s FTD Journey
A recent episode of Inside Edition explores the experiences of the late Susan Suchan and her family as they navigated her symptoms and eventual FTD diagnosis. The family’s FTD journey is the subject of the documentary “Susan,” which will debut later this year. Seven Years of Uncertainty Suchan’s daughter Heather Miller told Inside Edition that…
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