The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

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Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

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Action

Thursday, October 31, 2024 | 4-5 p.m. ET

HEALTHCARE PROFESSIONAL WEBINAR

Diagnosing Primary Progressive Aphasia

Ruth Dunbar Davee Professor of Neuroscience and Founding Director Emeritus of the Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University

Marsel Mesulam, MD

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Study Finds That FTD and ALS Have Similar Cellular and Molecular Characteristics

A study by MIT and Mayo Clinic researchers published in the Cell journal finds that FTD and ALS have strikingly similar cellular and molecular characteristics despite their clinical differences. The…

The Power of Advocacy

AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates…

Dear HelpLine: Medication and FTD

Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like to talk about medications to help with some of her symptoms. What should…

Psilera Announces Positive Preclinical Data for FTD Intervention Candidate

Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by…

AFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms

Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and…

Guest Feature: “Yes, and…” by Catherine Savini

Navigating the symptoms of FTD can be difficult for loved ones, especially when someone living with the disease experiences memory-related challenges. However, as Catherine Savini shares, meeting symptoms with “yes, and” instead…

Paris, IL mayor, Craig Smith, center, presents Dawn and Tim Kirby with a proclamation recognizing FTD Awareness Week.

When One Voice Sounds Like a Chorus: Dawn Kirby’s Relentless Campaign to Raise FTD Awareness

Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked…

Lima Awareness Week Proclamation - FBLI 1

AFTD Volunteer Secures 3 FTD Awareness Week Proclamations in Ohio

Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith…

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