Ohio Hybrid Caregiver Lunch and Learn: Frontotemporal Dementia
Bring a lunch and join AFTD Ambassador Judy Bearer for this lunch-and-learn event about frontotemporal degeneration (FTD), the most common cause of dementia in adults under 60 (though it can strike adults at any age). We will review possible causes and symptoms, find local resources, and learn how we can best support those affected by…
Read MoreAFTD Webinar: Diagnosing Primary Progressive Aphasia
With primary progressive aphasia (PPA), problems with language and communication typically deteriorate gradually over time. Initial symptoms are sometimes attributed to anxiety or stress until the ongoing symptoms become disruptive enough to prompt further assessment by a specialist. This webinar is intended for clinicians to support early detection and accurate diagnosis of PPA. Learners will…
Read MoreTell Your Legislators: Reauthorize Funding for the Older Americans Act
You may think that because frontotemporal degeneration strikes many people in the middle of their life, that the Older Americans Act may not apply to you. But the OAA provides funding for services for adult family members and other adults who care for individuals with Alzheimer’s disease and related disorders in their home, regardless of…
Read MoreAdvancing Hope: AFTD hosts 2024 FTD Research Roundtable Meeting
The FTD Research Roundtable is an annual program designed to accelerate FTD drug development by convening various scientific stakeholders to identify common challenges and advance solutions for FTD clinical trials. Biopharmaceutical companies currently conducting FTD pre-clinical and clinical trials are invited to join the FTD Research Roundtable, and in 2024, we were thrilled to have…
Read MoreAC Immune and Life Molecular Imaging Announce FDA Fast Track Designation for Tau PET Tracer
Swiss biopharmaceutical company AC Immune announced in late August that its partner, German biopharmaceutical company Life Molecular Imaging (LMI), received a Fast Track Designation from the US Food and Drug Administration (FDA) for a Tau PET tracer. PET, or positron emission tomography, is a form of medical imaging that uses a radioactive tracer to visualize…
Read MoreEmma Heming Willis Shares Her FTD Experience and Advocacy Work in “Town & Country” Magazine
Emma Heming Willis spoke with journalist Katie Couric about her journey as an FTD care partner, as well as her advocacy for FTD legislation and research following the diagnosis of her husband, Bruce Willis, in an interview published in the November 2024 issue of “Town & Country.” For her ongoing advocacy work, Mrs. Willis will be…
Read More2024 Driving Hope for FTD Rare Bourbon and Scotch Holiday Auction
AFTD Board of Directors Alumni, Michael Stowell, is hosting the 2024 Driving Hope for FTD Rare Bourbon and Scotch Holiday Auction with proceeds to benefit AFTD’s mission. There’s two ways to get involved in this event, for locals and not! Online Auction: from now until November 30th, you can bid on rare Buffalo Trace and…
Read MoreIn-Person Meet & Greet in Portland, Oregon
Meet actress and filmmaker Katie Prentiss to hear about her new full-length movie project, “Wake Up Maggie.” Hosts Allison Lindauer and David Spencer will provide drinks and appetizers at this open house, held on November 2, 2024, 4-6 PM. Donations for “Wake up Maggie” will be gladly received.
Read MoreProtected: Empower a Future Free of FTD with a Year-End Gift
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Read MoreAdvancing Hope: AFTD Attends Tau Consortium Investigators Meeting
Members of the AFTD staff, along with several funding partner organizations, gathered with the world’s top scientists studying tauopathies for the 2024 Tau Consortium Investigators Meeting (TCIM) this September in Denver. The Tau Consortium™ is a collaborative research program that is managed and funded by the Rainwater Charitable Foundation (RCF) that fosters collaboration and knowledge-sharing,…
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