The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

December 12, 2024
10:00 – 11:00 a.m. ET

Perspectives in Research Webinar

FTD Research 2024:

Where We’ve Come From and Where We’re Headed

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

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Newly diagnosed? Concerned about potential symptoms? Get the information you need.

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Resources for Diagnosis Support Groups

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News & Events

Tips & Advice: Understanding Ambiguous Loss and Anticipatory Grief Title image

Tips and Advice: Understanding Ambiguous Loss and Anticipatory Grief

Andy Atwood, a retired psychotherapist and clergyman, knows about grief. In addition to working as a grief counselor, he experienced grief firsthand after the 2021 death of his beloved younger…

Young Woman Tells Her Family’s FTD Story on Philadelphia News Segment

FTD care partner Hannah Clarke was interviewed on October 15 for a segment on Good Day Philadelphia about her experiences caring for her mother, Claudine, who is living with an…

Text: Study Finds Suicidal Thoughts Likelier in People with Dementia, Call for Better Supports Background: A person comforts another by holding their hands.

Study Finds Suicidal Thoughts Likelier in People with Dementia, Calls for Better Supports

A study conducted by researchers at University College London (UCL) published in the journal Ageing Research Reviews finds that people diagnosed with dementia have a higher chance of experiencing suicidal…

AFTD Ambassador Shares Her Family’s FTD Story with Massachusetts Newspaper

Dawn O’Gara, an ATD Ambassador, spoke about her beloved father’s FTD diagnosis and how it spurred her activism in an article published in the Worcester Telegram & Gazette on October…

Astellas and AviadoBio Announce Exclusive License Agreement for FTD-GRN Gene Therapy

Astellas Pharma and AviadoBio have announced an exclusive license agreement for AVB-101, an experimental gene therapy for FTD-GRN currently undergoing a phase 1/2 clinical trial in the United States and…

Volunteer Update: Celebrating the Growth of FTD Awareness

It is not often that the community comes together in person, so it was extra special when AFTD Ambassadors Melissa Fisher and Scott Rose organized a gathering in Portland to…

Advancing Hope – AFTD Attends 2024 International Society for FTD Conference

The AFTD was proud to have ten staff members, and four Board members attend the International Society for FTD Conference (ISFTD) in Amsterdam in late September. This is a premier…

Study Finds That FTD and ALS Have Similar Cellular and Molecular Characteristics

A study by MIT and Mayo Clinic researchers published in the Cell journal finds that FTD and ALS have strikingly similar cellular and molecular characteristics despite their clinical differences. The…

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