Posts de Gwen Gainer
La famille d'un membre de Monty Python s'exprime pour la sensibilisation à FTD
La famille du membre des Monty Python, Terry Jones, a accordé une interview au journal britannique The Observer le 16 avril pour aider à faire connaître FTD. Jones a reçu un diagnostic de…
Lire la suiteLe chef du groupe de soutien AFTD présenté dans un journal de l'Illinois
Katrina Hellman and her husband, Darren, who has FTD, were the subjects of an article published in the Pantagraph on April 7. Darren, just 51 years old, began showing symptoms…
Lire la suiteBijoux imparfaitement parfaits
Imperfectly Perfect Jewelry is partnering with AFTD to help find a cure… In 2016, two years after her mom was diagnosed with FTD in 2014, Wendy from Massachusetts started designing…
Lire la suiteL'AFTD au Congrès : Rejeter le projet de loi sur l'information génétique
In a March 17 letter (pdf) to four key members of Congress, AFTD Executive Director Susan L-J Dickinson spoke out against a bill that would require employees to divulge genetic information…
Lire la suiteLa 11e Conférence internationale sur les démences frontotemporales, Sydney
The 11th International Conference on Frontotemporal Dementias (ICFTD) will be held in Sydney, Australia on 11 – 14 November 2018. From the event organizers: “This is the first time ICFTD will be…
Lire la suiteLe magazine WAG souligne la nécessité d'une sensibilisation plus large au FTD
The story of Andy Nissen, a Texas veteran who was diagnosed with FTD at age 37 and died last year, emphasizes the need for more widespread awareness of the disease,…
Lire la suiteOpportunité d'emploi AFTD : Directeur financier
AFTD is recruiting for a newly-created Chief Financial Officer position. Please share widely this opportunity to play a pivotal leadership role in the organization’s work to drive research to a…
Lire la suiteSéance d'information FTD
Join Katie Brandt, MM, Community Resource Specialist, FTD Unit, Massachusetts General Hospital and AFTD Volunteer, and Connie Archambault, MEd, FTD Caregiver and AFTD Volunteer to learn about FTD, connect with others in…
Lire la suite2/15 dans le Maryland : faire la lumière sur la recherche actuelle sur la FTD
Featuring guest speaker Dr. Chiadi Onyike, Neuropsychiatrist and Clinical Epidemiologist, Director of the Hopkins Young-Onset Dementias program, and an AFTD Medical Advisory Council member. Don’t miss this opportunity to hear…
Lire la suiteDu soin à la guérison : événement éducatif de l'unité MGH FTD 2017
The Frontotemporal Disorders (FTD) Unit at Massachusetts General Hospital (MGH) is proud to present From Care to Cure, an annual education day for patients, families, caregivers and elder care professionals…
Lire la suite