Calendar of Events
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A Lot Like Fun – Only Different
A Lot Like Fun – Only Different is a book about friendship. It features Chris Kelley, who is living with FTD. Author Jack Livingston says, “Chris was the ringleader of ‘cool stuff,’ routinely sweeping up anyone that was willing to join him in his rule-bending escapades. Chris was the guy who was always up for…
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AFTD Advocacy Training for NY FTD Registry
AFTD Advocacy Training for NY FTD Registry
Join AFTD's advocacy team for training to prepare New York residents to advocate for the passage of state Senate Bill S7874, sponsored by Michelle Hinchey. If passed, the bill would create a registry documenting all FTD diagnoses in the state, providing crucial data to researchers. The training will be hosted on Zoom, interested participants are…
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At the Heart of Caring: A Caregiver’s Journal
Written by Katherine Long and Lindsay Feinberg in memory of Lindsay’s father, Andrew Feinberg, At the Heart of Caring: A Caregiver’s Journal prompts the reader with daily activities to establish self-care habits. Caregivers and Care partners can build their toolset to encourage reflection, honor their experiences, and express themselves in this handy journal. Starting April 17,…
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Perspectives in Research Webinar: Navigating Social and Legal Challenges in Familial FTD
Perspectives in Research Webinar: Navigating Social and Legal Challenges in Familial FTD
Join us for a conversation with Prof. Jalayne Arias, a researcher focused on policy, ethics, and law, and genetic counselor Laynie Dratch as they discuss important considerations for families impacted by familial FTD. They will highlight some of the sociolegal challenges these families can face, and will explain the protections provided by federal laws like the…
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Terre Haute, Ind. Meet & Greet
Terre Haute, Ind. Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event in Terre Haute, Indiana on Saturday, April 27, starting at 2:00 p.m. ET. To RSVP, send an email to AFTD Ambassador Dawn Kirby at dkirby@theaftd.org. The event will take place at Gingersnaps Coffeehouse & Cafe, located in…
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New York City Meet & Greet
New York City Meet & Greet
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event at 5th & Mad, in Midtown Manhattan, on Tuesday, April 30, starting at 6:30 p.m. ET. To RSVP, send an email to Lindsay Feinberg at lindsay.feinberg@gmail.com. Download this flyer to learn more — and be sure to…
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The Electric Merch Co.
Julia Dawson, Chief Brand Curator & Creative Director at The Electric Merch Co., recently launched a new set of clothing with MOTHER and DAUGHTER embroidered in the company’s signature pink couture gradient font. This collection is in memory of her mother who had FTD and died in October 2023—and all mother/daughter duos that care for…
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AFTD 2024 Education Conference – Houston, Texas
AFTD 2024 Education Conference – Houston, Texas
The AFTD 2024 Education Conference is coming to the Hyatt Regency Houston on May 3, 2024! We hope you will be able to join us for this unique opportunity to connect with people who understand the journey, learn about available resources and supports, and engage with experts to gain insight on the latest in FTD…
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Alzheimer’s Association 38th Annual Wisconsin Conference
Volunteer Alice Brecheisen will be at the Alzheimer's Association 38th Annual Wisconsin Conference on May 5-6 with an info table about FTD. The Annual Wisconsin Conference is a comprehensive event on dementias like FTD and Alzheimer's disease that attracts hundreds of healthcare professionals. Continuing Education Credits are available for attendees through University of Wisconsin - Stevens…
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