Posts by Mike Mooney
Help & Hope: The new FTD Disorders Registry Platform is Now Live!
The FTD Disorders Registry announced the launch of their updated platform at the AFTD 2024 Education Conference in Houston, TX. By joining the FTD Disorders Registry, you are counted as…
Read MoreStudy Discovers How Variations in TMEM106B Gene Influence Risk and Severity of FTD
In a study published earlier this year in the journal Science Translational Medicine, researchers from Mayo Clinic share their discovery of the ways inherited variations in a specific gene can…
Read MoreN.Y. State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry
New York State Senator Michelle Hinchey introduced and sponsored a bill to the state Senate that, if approved, would create a statewide registry of FTD diagnoses. Sen. Hinchey announced the…
Read MoreVolunteer Update: How Can a Meet & Greet Help?
Navigating FTD can be a frustrating, exhausting, and isolating ordeal for persons diagnosed, care partners, and family members. Information about the disease and how to manage its symptoms guidance can…
Read MoreAFTD announces 2023 Pathways for Hope Pilot Grant recipients
AFTD’s Pilot Grant program – our longest running funding opportunity – provides seed funding for innovative FTD research, laying the groundwork for additional follow-on support from a larger funder. Pathways…
Read MoreTips & Advice: Dealing With the Loss of Empathy
One of the most distressing symptoms of FTD is a loss of empathy, which can cause persons diagnosed to become uncharacteristically indifferent towards other people, including loved ones. This loss…
Read MoreU.K. Researchers to Conduct Nationwide Trial Evaluating Blood Test for Dementia
Researchers in the United Kingdom are preparing to conduct a nationwide trial evaluating blood tests for biomarkers of dementias like FTD and Alzheimer’s disease, according to a recent article by…
Read MoreDear HelpLine: Brain Donation
Dear HelpLine, How do we learn more and start the process of arranging a brain donation for FTD research? Brain donation can be a difficult topic to consider and discuss,…
Read MoreCase Report Discusses Symptoms and Diagnosis of Progressive Supranuclear Palsy
A case report published earlier this year in the journal Radiology Case Reports discusses the symptoms and features of progressive supranuclear palsy (PSP) and explores different ways to diagnose it.…
Read MoreAdvancing Hope: AFTD and Registry Staff attend Neurology Meeting
AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April 13-18 in Denver. Will Reiter, Ray Frattone, and Shana Dodge from AFTD joined…
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