Posts by Mike Mooney
BBC to Air Documentary on Former Rugby Player with Motor Neuron Disease
The British Broadcasting Corporation (BBC) is set to air a documentary that highlights the experiences of a former professional rugby player who was diagnosed with motor neuron disease (MND). Rob…
Read MoreAFTD Ambassador Shares FTD Information, Experiences on Facebook Live
AFTD Ambassador Jerry Horn recently took part in a Facebook Live event hosted by the E.A. Roberts Alzheimer’s Center to talk about FTD and share his firsthand experiences as a…
Read MoreKarate Black Belt Shares His Experiences with Motor Neuron Disease
A karate ace in the UK shared his experiences of wanting to help people and stay active after his motor neuron disease (MND) diagnosis. The first signs that Liam Blaney…
Read MoreFinding Inclusive Dementia Care Remains a Challenge for LGBTQIA+ Community
An article published by Xtra Magazine illustrated the difficulties that members of the LGBTQIA+ community experience when trying to find long-term care for FTD and other dementias. Care partner…
Read MoreAt International Dementia Conference, Panelists Call for More Funding and Training for Specialized Dementia Care
Panelists at the International Dementia Conference in Sydney called for increased funding and training to address the need for greater access to specialized dementia care. FTD care partner Lynne Sewell…
Read MoreCare Partner Shares How Cultural Disconnect Makes Dementia Care Harder for AAPI Community
A recent article in Northwest Asian Weekly highlights how a disconnection between care infrastructure and culture can make dementia care more difficult for the Asian American and Pacific Islander (AAPI)…
Read MoreAdvocate Talks About Experience with Isolation and FTD in the LGBTQIA+ Community
Dementia advocate Patrick Ettenes recently shared his experience with FTD with the Times of Malta, and underscored the need for better support for people with dementia in the LGBTQIA+ community.…
Read MoreAFTD Ambassador Highlights Difficulties in Getting an FTD Diagnosis
AFTD Ambassador Deb Scharper shared the difficulties that she faced trying to get an accurate FTD diagnosis for her husband in a story published by The Healthy. Scharper’s husband, Tommy,…
Read MoreEditorial Emphasizes Benefits of Telehealth for People with Dementia
An editorial recently published in The Hill emphasized the benefits of telehealth care for people with FTD, Alzheimer’s disease, and other forms of dementia. Jason Karlawish, MD, a professor…
Read MoreStudy Evaluates Wearable Tech for Monitoring PSP Progression
A study recently published in Movement Disorders evaluated whether wearable technology is useful for monitoring the progression of progressive supranuclear palsy (PSP). Clinical rating scales that require manual observation…
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