Posts by Mike Mooney
AFTD Update:Â Updated Digital Resources for FTD & GeneticsÂ
The FTD & Genetics section of AFTD’s website has been newly updated to help families better understand FTD’s genetic risk and the options available for addressing it. Approximately 40% of…
Read MoreLandmark Trial Evaluating Potential FTD-GRN Therapeutic Completes Enrollment
Biotechnology company Alector Therapeutics announced on October 27 that it has completed enrollment for INFRONT-3, a Phase 3 clinical trial testing the safety and efficacy of the drug latozinemab as…
Read MoreThe Lived Experience of FTD: Anosognosia
The following article was written by Kevin Rhodes, a member of AFTD’s Persons with FTD Advisory Council. Council members like Kevin and Anne Fargusson, who contributed to this article, work…
Read MoreDoctor Living with FTD Discusses Life Post-Diagnosis in Interview
In an interview recently broadcast by Atlanta News First, former gynecologist Dr. Seth Stern discussed his work to spread awareness of FTD and his desire to live life to the…
Read MoreVolunteer Update: Giving Purpose to the Pain – Becoming an AFTD Ambassador and FTD Advocate
AFTD Ambassadors know the power of a single story and the healing potential of finding others who understand. Ambassadors are volunteer leaders who represent AFTD in communities across the U.S.,…
Read MoreDear HelpLine: Long-Distance Care Partners
Dear HelpLine, My dad was recently diagnosed with FTD. I’m devastated by the diagnosis, but I live in another state. How can I support him? How can I get support…
Read MoreWebMD Staff Writer Shares His Experience as an ALLFTD Participant
WebMD staff writer Damian McNamara, MA, shared his experiences as an ALLFTD participant in a post published on the website’s blog. “I always figured I would stay a safe distance…
Read MoreAdvancing Hope: FTD Disorders Registry Deploying Upgraded Platform Under New Director
The FTD Disorders Registry is a powerful tool in the effort to discover treatments and a cure for FTD, leveraging the stories of persons diagnosed with FTD, their caregivers (both…
Read MoreCase Report Co-Authored by AFTD Board Member Highlights Varying Presentations of FTD-GRN
A case report recently published in the journal Clinical Parkinsonism & Related Disorders highlights how even between people with the same variant of genetic FTD caused by a GRN mutation…
Read MoreWorld FTD Awareness Week Guest Feature: Advocating for the Future, Advocating for Love – Insights From a Lifelong FTD Journey
Despite the grief, frustration, and sadness that can affect families on the FTD journey, many have channeled those experiences positively, using them for motivation to create a better future for…
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