Posts by Beth Velletri
Thanks to Generosity of AFTD Ambassador, Californians Receive Crucial Financial Help
Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she…
Read MoreYoung Caregiver Talks About Finding Support Amid FTD Journey on Dementia UK Podcast
A young FTD caregiver named Lizzie discussed the grief, uncertainty, and unexpected responsibilities she faced as she cared for her father — all while navigating the natural changes of young…
Read MoreTell Your Legislators: Reauthorize Funding for the Older Americans Act
You may think that because frontotemporal degeneration strikes many people in the middle of their life, that the Older Americans Act may not apply to you. But the OAA provides…
Read MoreEmma Heming Willis Shares Her FTD Experience and Advocacy Work in “Town & Country” Magazine
Emma Heming Willis spoke with journalist Katie Couric about her journey as an FTD care partner, as well as her advocacy for FTD legislation and research following the diagnosis of…
Read MoreTips and Advice: Understanding Ambiguous Loss and Anticipatory Grief
Andy Atwood, a retired psychotherapist and clergyman, knows about grief. In addition to working as a grief counselor, he experienced grief firsthand after the 2021 death of his beloved younger…
Read MoreYoung Woman Tells Her Family’s FTD Story on Philadelphia News Segment
FTD care partner Hannah Clarke was interviewed on October 15 for a segment on Good Day Philadelphia about her experiences caring for her mother, Claudine, who is living with an…
Read MoreAFTD Ambassador Shares Her Family’s FTD Story with Massachusetts Newspaper
Dawn O’Gara, an ATD Ambassador, spoke about her beloved father’s FTD diagnosis and how it spurred her activism in an article published in the Worcester Telegram & Gazette on October…
Read MoreThe Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates…
Read MoreAFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and…
Read MoreWhen One Voice Sounds Like a Chorus: Dawn Kirby’s Relentless Campaign to Raise FTD Awareness
Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked…
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