Washington, D.C.
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Take charge of your FTD journey -- and make things easier for the next family -- by becoming an AFTD volunteer. Contact a AFTD Volunteer Coordinator at volunteer@theaftd.org.
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News & Events Near You
Advancing Hope: AFTD Attends AAIC 2024.
Debra Niehoff, Kim Jenny, and Shana Dodge from AFTD and Sweatha Reddy from the FTD Disorders Registry…
The Lived Experience of FTD: Getting to Know the Persons with FTD Advisory Council: Deb Jobe
Formally chartered in 2020, the Persons with FTD Advisory Council works to ensure that the insights and…
U.K. Man Discusses FTD Caregiving with BBC and Yahoo! Life
An FTD caregiver in the United Kingdom spoke about the disease’s emotional and financial impact in recent…
Aviado Bio CMO Discusses ASPIRE-FTD Clinical Trial with Neurology Live
In a recent interview with Neurology Live, Aviado Bio chief medical officer David Cooper, MD, discussed the…
Advocacy Update: FTD Awareness Week
With FTD Awareness Week quickly approaching, we asked AFTD advocates to help us obtain a resolution or…
AFTD Brand Influencer Discusses Commitment to Caring
AFTD Brand Influencer Nicole Petrie shared her family’s FTD journey with host Lisa Opie on the podcast…
Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy
A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset…
AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast
AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the…
AFTD Grant Recipient Discusses Gene Therapy for FTD-GRN on Canadian TV
In an interview with the Canadian Broadcasting Corporation, Dr. Simon Ducharme of McGill University in Montreal discussed…
AFTD Volunteers Achieve FTD Awareness Week in 5 More States
In recent weeks, AFTD volunteers have successfully lobbied legislators to declare September 22-29, 2024, as FTD Awareness…
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