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this journey alone.
and support for families facing FTD.
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degeneration of the frontal
and/or temporal lobes of the brain.
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What You Need to Know
that he has been diagnosed with FTD.
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Statement
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Statement
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Resources
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Action
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provide a resource,
an outlet, and a place
to connect with others
who understand.
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News & Events
Dear HelpLine: Support for Familial and Genetic FTD
Dear HelpLine, My mom was recently diagnosed with FTD; my late uncle and grandmother had dementia, and I’m concerned that this may be genetic. Is there support for people facing…
MOREVesper Bio Completes Phase 1 Clinical Trial for Potential Disease Modifying Treatment for FTD-GRN
Biotechnology company Vesper Bio announces it has completed a Phase 1 clinical trial of its potentially disease-modifying treatment for FTD-GRN. The recently completed trial evaluated the safety and tolerability of…
MOREDelaware Passes Resolution Recognizing FTD Awareness Week 2024
Delaware became the third state to officially recognize FTD Awareness Week 2024 (September 22-29) after its Senate unanimously passed the resolution SR23 on June 27. State Senator Kyra Hoffner sponsored…
MOREAdvocacy Update: Join AFTD in Advocating for FTD Awareness Week in All 50 States
This past May, AFTD staff and other FTD advocates traveled to New York and California to celebrate the successful passing of their respective resolutions that commemorate September 22-29 as FTD…
MOREStudy Explores Racial Differences in Clinical Presentation of FTD Symptoms, Disease Severity
A study published in JAMA Neurology explores whether FTD symptoms present differently based on the race of the person diagnosed. Previous studies have sought to compare neuropsychiatric symptoms in Black/African…
MOREAFTD Webinar: FTD and ALS — A Collaborative Approach to Diagnosis and Care
We know of several genes that can cause hereditary FTD, ALS, and ALS with FTD, with C9orf72 the most common. Yet genetics is not the complete story, as these conditions…
MOREAdvancing Hope: AFTD-ADDF Partnership Announces New Award in Drug Discovery Program
AFTD has partnered with the Alzheimer’s Drug Discovery Foundation (ADDF) since 2007 to support preclinical research on promising new drugs through the Accelerating Drug Discovery for FTD program. We are…
MOREViewpoints of FTD – Brain Donation
While there is currently no cure or approved treatments for FTD, increasing numbers of diagnostic tools and experimental treatments are entering the clinical trial phase of their development. A major…
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