Texas
AFTD can connect you with reliable information, valuable resources, essential support, and opportunities to make a difference.
Contact AFTD’s HelpLine
AFTD's Helpline can provide guidance on resources and opportunities to connect in your state. We can also answer questions you may have regarding FTD diagnosis, care and support.
Contact our HelpLine by Phone: 1-866-507-7222 | Contact our HelpLine by Email: info@theaftd.org.
Support Groups (local, regional, or national) meet once a month and are led by AFTD-trained volunteers or organizations that understand FTD to foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
FTD Diagnostic Centers can help with diagnosis, guidance, and connections to research opportunities.
Get Involved
Become an AFTD volunteer to connect with our community and make the journey better for the next family. AFTD offers a variety of opportunities for volunteers to raise awareness of FTD, raise critical funds and educate local communities. Opportunities include community awareness activities, facilitating support groups, or hosting a local fundraising event.
Sign up here to volunteer or learn more by contacting your AFTD Volunteer Engagement Coordinator at cjohnson@theaftd.org
Carrie Johnson
Volunteer Engagement Coordinator
cjohnson@theaftd.org
You can also contact a volunteer local to you to find out more: AFTD Ambassadors are volunteer leaders who represent AFTD in communities and states across the United States. They raise awareness of FTD through networking, outreach, speaking engagements and attending events on behalf of AFTD.
Zoy Kocian
zkocian@theaftd.org
(Click here to learn more about Zoy Kocian’s connection with FTD)
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News & Events Near You
Study Investigates Incidence Rates of FTD and Other Young-Onset Dementias in Italy
A study published in the journal Diagnosis, Assessment & Disease Monitoring investigates the incidence of neurodegenerative young-onset…
AFTD Ambassador Shares Her Story on “All Home Care Matters” Podcast
AFTD Ambassador Debbie Elkins and AFTD Support and Education Director Esther Kane, MSN, RN-CDP, appeared on the…
AFTD Grant Recipient Discusses Gene Therapy for FTD-GRN on Canadian TV
In an interview with the Canadian Broadcasting Corporation, Dr. Simon Ducharme of McGill University in Montreal discussed…
AFTD Volunteers Achieve FTD Awareness Week in 5 More States
In recent weeks, AFTD volunteers have successfully lobbied legislators to declare September 22-29, 2024, as FTD Awareness…
Dear HelpLine: Transitioning to Facility Care
Dear HelpLine, We have just made the difficult decision to move my mom into facility care not…
Advancing Hope: AFTD and University of Pennsylvania Host FTD Workshop
On June 11, 2024, AFTD collaborated with the University of Pennsylvania Frontotemporal Degeneration (FTD) Center on the…
ASPIRE-FTD Phase 1/2 Clinical Trial Opens First US Site at Ohio State University
Biopharmaceutical company AviadoBio announced on July 1 that its ASPIRE-FTD phase 1/2 clinical trial has opened its…
AFTD Ambassador Reaches Midway Point of Coast-to-Coast Bike Ride to Raise FTD Awareness
KCTV, the CBS affiliate in Kansas City, Mo., aired an interview with AFTD Ambassador Spencer Cline, who…
August 8, 2024: In-Person Meet & Greet in Portland, Ore.
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet…
Tips & Advice: Finding Answers – FTD Research and You
When Damian McNamara, a staff writer for WebMD, learned that his cousin had been diagnosed with ALS…
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