Clinical Issues

Hantera beteendevariant FTD

This session explores behavioral variant FTD from four distinct and complementary perspectives – from the clinical perspective, a care-and-support perspective, and from a person diagnosed and care partner.

Presentatörer:
Chuang-Kuo Wu, MD, PhD (presentation)
Marianne Sanders, RN (presentation)
Amy och George Shives
Jill Shapira, PhD, RN, facilitator

 

---

Hantera primär progressiv afasi

This session explores PPA from four distinct and complementary perspectives – from the clinical perspective, a care-and-support perspective, and from a person diagnosed and care partner.

Presentatörer:
Maura Silverman, MS, CCC/SLP
Tracey Lind och Emily Ingalls
Mary O'Hara, facilitator

 

---

Hantera ALS/FTD och rörelsestörningar

Utforska de fysiska och kognitiva utmaningarna med ALS/FTD, progressiv supranukleär pares och kortikobasal degeneration från kliniska, genetiska och vårdande perspektiv.

Presentatörer:
Gabriel Leger, MD
Jamie Fong, CGC
Miki Paul, PhD
Debra Niehoff, PhD, facilitator

 

---

Clinical Issues

Läkaren tror att det är FTD. Nu då?

This session will help those who are facing a new diagnosis understand FTD and start planning for care.

Presentatörer:
Christy Turner, CDP, CDCM, CCSI
Marianne Sanders, RN

 

---

Utveckla kommunikationsteam och verktyg

Having PPA does not mean you have nothing to say. This session focuses on finding alternative means of communicating when language is lost.

Presenter:
Maura Silverman, MS, CCC/SLP

 

---

Utveckla miljö- och beteendestrategier

This session demonstrates how to use a problem-solving approach to develop creative and individualized strategies to address challenging behaviors due to FTD.

Presenters/AFTD Partners in FTD Care Advisors:
Jill Shapira, PhD, RN; Sue Hirsch, MA; and Sandi Grow, RN (presentation)

 

---

Förlust och sorg i FTD

Upplevelsen av saknad och sorg är komplicerad. Denna session kommer att diskutera hur man hanterar denna unika och personliga upplevelse.

Presentatörer:
Bridget Moran-McCabe, MPH, AFTD
Elaine Rose, AFTD volontär

 

---

Anpassning till FTD: En diskussion för personer som lever med FTD

This session features a panel of people living with FTD discussing how to compensate and overcome challenges in daily life. This session is led by and is for people living with the disease. Care partners and family members of those diagnosed will also benefit from this session.

Presentatörer:
Matt Sharp, MSS, AFTD
Amy Shives, MEd

 

---

Open Q&A

Forum för Vårdpartners

There’s never enough time to talk with professionals who have expertise in FTD. This session provided care partners with an additional opportunity to ask questions and hear the concerns of peers.

Presentatörer:
Chuango-Kuo Wu, MD, PhD
Mary Ausstrom, PhD
Maura Silverman, MS, CCC/SLP
Jill Shapira, PhD, RN, facilitator

 

---

Hitta hjälp, dela hopp: The Power of Social Media Storytelling

This session explores how you can leverage social media to increase awareness and understanding of FTD.

Presentatörer:
Lauren Gauthier, AFTD Online Community Coordinator, facilitator
Melissa Fisher
Scott Rose
Amy Johnson
Cindy Odell
Lauren Rowans
Kimberly Chu

 

---

Engagerar sig med AFTD för vårdgivare

Learn about how AFTD can support healthcare providers in your work with people with FTD and their families, and join us to continue to increase awareness of FTD, shorten time to diagnosis and improve the quality of care available.

Presenter:
Sharon Denny, AFTD Senior Director of Programs, facilitator

 

---

Forum för unga vuxna

An opportunity for family members and FTD care partners in their 20’s & 30’s to interact with experts as well as peers with similar concerns.

Presentatörer:
Gabriel Leger, MD
Jamie Fong, CGC
Elvira Jiminez, PhD
Mary O’Hara, LCSW, facilitator

 

---

Forum för människor som lever med FTD

This session offered people living with a diagnosis an opportunity to meet with medical, research and dementia experts to discuss questions and care needs.

Presentatörer:
Kimiko Domoto-Reilly, MD
Marianne Sanders, RN
Matt Sharp, MSS, facilitator

 

---

Ytterligare ljud/video:

Morgonsessioner
Vilka är dina livlinor?