Advancing Hope: AFTD håller 2023 Holloway Summit Meeting on Biomarkers for FTD
Det andra årliga AFTD Holloway Summit, fokuserat på biomarkörer för FTD, hölls från 30 november till 1 december i Miami Beach, FL. Mer än 50 deltagare från akademi, industri, ideella partners och personer med lång erfarenhet av FTD bidrog till livliga diskussioner om det aktuella tillståndet för FTD-biomarkörer och olika metoder för att underlätta...
Läs merKära hjälplinje: Hantera genetisk osäkerhet
Dear HelpLine, Each time I visit home for the holidays and see firsthand how FTD has affected my parent, my anxiety increases. Is it normal to worry that other family members will develop FTD, too – or that I will get it myself? The holiday season is a time for family gatherings. While opportunities to…
Läs merAFTD och ADDF förlänger Treat FTD Fund Program till 2035
AFTD and the Alzheimer’s Drug Discovery Foundation (ADDF) have committed to extending the Treat FTD Fund program through 2035, providing an additional ten years of support to accelerate treatment development for FTD disorders. The Treat FTD program provides essential funding for early-stage clinical trials testing disease-modifying and symptom-relieving treatments. While the program supports experimental drugs,…
Läs merGenterapi för FTD: Vad behöver jag veta?
Under de senaste åren har nya kliniska prövningar påbörjats för läkemedel som potentiellt kan bromsa eller stoppa utvecklingen av FTD orsakad av specifika gener. Genterapi och genredigeringsteknologier som har varit tillgängliga för andra sjukdomar och tillstånd lovar en behandling för FTD, men som med alla nya medicinska ingrepp,...
Läs merThe Lived Experience of FTD: Grief on the FTD Journey
The following article was written by members of AFTD’s Persons with FTD Advisory Council, who work to ensure that the insights and voices of people living with FTD help guide AFTD’s policies, programs, and services. The definition of grief is “a keen mental suffering or distress over affliction or loss; sharp sorrow; painful regret.” Grief…
Läs merPassage Bio tillkännager hoppfulla initiala data från fas 1/2 klinisk prövning
Passage Bio released promising preliminary results from its phase 1/2 clinical trial evaluating an experimental treatment for FTD cases caused by a GRN genetic mutation (FTD-GRN). The “upliFT-D” trial is evaluating PBFT02, a gene therapy that uses an engineered virus (known as a “vector”) to deliver an un-mutated copy of the GRN gene. FTD-GRN is…
Läs merTips och råd: Navigera i Apathy i FTD
A hallmark symptom of FTD, apathy can be particularly hard to deal with for persons diagnosed, care partners, and family members. Apathy manifests as an apparent loss of interest in things that used to have meaning to a person diagnosed; it could present as a lack of enjoyment during a holiday gathering, a decline in…
Läs merAdvancing Hope: AFTD är värd för FTD Social på Society for Neurosciences årsmöte
The Society for Neuroscience (SfN), with nearly 35,000 members in 95 countries, is the world’s largest professional organization for brain researchers. SfN’s annual meeting provides a forum for scientists from around the globe to present the results of their research, discover new ideas, engage with colleagues, and learn about new tools and techniques they can…
Läs merRedaktören delar hur basket hjälper honom att knyta an till en vän som har PPA
Retired managing editor Lonny Cain of The Times (Ottawa, Ill.) shared in a recent article how basketball helps him communicate and continue to bond with his lifelong friend Randy, who is living with primary progressive aphasia (PPA). Cain notes that he can’t recall how the duo met, musing that Randy may have simply shown up…
Läs mer"Vi är bara vanliga människor med en sjukdom", skriver demensförespråkare med FTD i en uppsats
In an essay published by Inside Ageing, Bobby Redman, a retired behavioral psychologist living with FTD, discusses the results of a survey by Dementia Australia. According to the survey, nearly one-third of Australians found persons living with dementia to be frightening. The figure increased from 23% over the last decade. Redman writes that, as a…
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