The Power of Advocacy
AFTD would like to highlight the power of advocacy in contributing to the greater awareness of FTD. This year’s World FTD Awareness Week was filled with contributions large and small by advocates who took their time to create awareness and fundraising events, who posted about FTD and AFTD on social media, and who worked with their legislators…
Läs merDear HelpLine: Medication and FTD
Dear HelpLine, My mom has FTD and we have an upcoming appointment with her physician. We’d like to talk about medications to help with some of her symptoms. What should we know about medication and FTD? While there are currently no medications available that can slow or stop FTD’s progression, some drugs can be prescribed…
Läs merPsilera Announces Positive Preclinical Data for FTD Intervention Candidate
Biotechnology company Psilera announced positive preclinical data for its FTD drug candidate, moving it another step towards first-in-human studies. The company also underscored promising data from efficacy studies conducted by the University of South Florida (USF). The drug, a compound called PSIL-006, is a psilocybin derivative that has a safe, non-hallucinogenic profile, making it a…
Läs merAFTD Care Partner Learning Series Webinar: Navigating Behavioral Variant FTD Symptoms
Behavioral variant FTD, or bvFTD, makes up almost half of all FTD diagnoses. Behavioral symptoms can fundamentally alter one’s personality, which can be extremely distressing for the person diagnosed and challenging for care partners, family members, and friends. Learning about and understanding these symptoms can help care partners approach behaviors and support the person with…
Läs merSkyddad: A Conversation with Alector’s Vice President of Clinical Development
Det finns inget utdrag eftersom detta är ett skyddat inlägg.
Läs merIn-Person Meet & Greet in Danville, CA
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD volunteer Judy Price. RSVP for this event by emailing judyaprice1@icloud.com. To learn more, download this flyer.
Läs merIn-Person Meet & Greet in Fairmont, WV
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by Debbie Elkins, AFTD Ambassador for West Virginia. RSVP for this event by emailing delkins@theaftd.org. To learn more, download this flyer.
Läs merGästinslag: "Ja, och..." av Catherine Savini
Att navigera efter symtomen på FTD kan vara svårt för nära och kära, särskilt när någon som lever med sjukdomen upplever minnesrelaterade utmaningar. Men, som Catherine Savini delar med sig av, kan mötet med symtom med "ja och" istället för "nej, för" förvandla möten med frustration och isolering till meningsfulla stunder av lekfullhet och anslutning. Nyligen berättade en nära vän för mig en...
Läs merWhen One Voice Sounds Like a Chorus: Dawn Kirbys obevekliga kampanj för att öka FTD-medvetenheten
Dawn Kirby och hennes man, Tim, får reda på FTD. Paret presenterades nyligen i en artikel i Prairie Press (Paris, Ill.), där de pratade om sitt förespråkande på uppdrag av FTD-medvetenhet. Dawn och Tim har fina minnen av att se sin dotter, Kara Ike, komma till sin rätt i...
Läs mer26 oktober 2024: In-Person Meet & Greet i Middletown, DE
Gå med och lär av andra som förstår FTD-resan vid detta personliga AFTD Meet & Greet-evenemang, arrangerat av AFTD-volontären Jeanne Cestone, som äger rum från 10:30-11:30 på lördagen den 26 oktober 2024. Evenemanget kommer att hållas på Appoquinimink Community Library i Middletown, Del. (204 E. Main Street). OSA för detta event...
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