News & Events
Partners in FTD Care: Life After an FTD Diagnosis — What Families Need to Know
An FTD diagnosis can be overwhelming at first. Those receiving the news may initially be overwhelmed with grief, sadness, and loss. Some families are not ready to dive into FTD…
Advancing Hope: AFTD Announces 2026 Recipient of the Well-Being in FTD Pilot Grant
AFTD is pleased to announce the newest recipient of the Well-Being in FTD Pilot Grant! This program funds research focused on the well-being of persons diagnosed, families, and caregivers, and…
California Senate Passes Bipartisan Bill Expanding Neurodegenerative Disease Registry to Include Frontotemporal Degeneration
AFTD applauds the California Senate for its leadership in unanimously passing Senate Bill 1047, advancing legislation to expand the California Neurodegenerative Disease Registry to include frontotemporal degeneration (FTD). Championed by…
Volunteer Update: 2026 AFTD Ambassador Summit Fosters Connection and Collaboration
On May 2, the 2026 AFTD Ambassador Summit brought together 22 dedicated ambassadors in Renton, Washington, for a day of collaboration, strategy, and shared commitment to advancing AFTD’s mission. Designed…
Passage Bio Announces Discontinuation of upliFT-D Clinical Trial for FTD-GRN
Biotechnology firm Passage Bio announced in an emailed release that, due to issues that arose during meetings with the US Food and Drug Administration (FDA), it will be discontinuing the…
Community Connection: Bringing the Heat — Kim Stasa’s Hot Shot Challenge
FTD is a daunting diagnosis that can feel overwhelming for everyone involved, but you can make a meaningful impact in the effort to end FTD. Taking part in an AFTD…
The Dickinson Empowerment Fund: Honoring a Legacy and Transforming the Future of FTD
For nearly two decades, AFTD CEO Susan L-J Dickinson, MSGC, has guided the organization with vision, compassion, and determination – transforming a small volunteer-led effort into a leading force against…
Advancing Hope: AFTD Staff Give Keynote Address at ALS United Mid-Atlantic Help & Hope Symposium
On April 9, 2026, AFTD sponsored and staff attended the ALS United Mid-Atlantic Help & Hope Symposium in King of Prussia, PA. ALS United is a national network formed by…