The Association for Frontotemporal Degeneration

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

September 21 - September 27, 2025

World FTD Awareness Week

What if it's FTD? #endFTD

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You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

Bruce Willis & FTD

The Willis' Unexpected Journey

Initial Family Statement

Read about Emma Heming Willis' book tour

Learn more about FTD

September 25, 2025 | 12 p.m. ET

aftd helpline WEBINAR

The Lived Experience with FTD:

The Road to an FTD Diagnosis

13 Years of Food for Thought

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Celebrate 13 years of turning meals into moments of awareness, connection, and hope.

Join us this September 21 – October 5

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Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

News & Events

Advocacy Update: FTD Research at NIH Highlighted in FY26 LHHS Appropriations Reports

AFTD is excited to share that congressional reports for the Fiscal Year (FY) 2026 Labor, Health and Human Services, Education, and Related Agencies (LHHS) appropriations bills in the Senate and…

Carrie Edwards donates lottery winnings - FBLI - 2

AFTD Ambassador Carrie Edwards donates lottery winnings to AFTD

Carrie Edwards recently surprised Virginia lottery officials by telling them her plans for the $150,000 she won on September 8. Those plans? Give it all away. But those who know…

Group of MAPT Gene Variations Linked to Greater Risk of Pick’s Disease Pathology, Study Finds

A study published in The Lancet Neurology found that a MAPT genetic variant is associated with an increased risk of an FTD tau pathology called Pick’s disease. This MAPT gene…

AFTD Ambassador Julia Pierrat featured in Los Angeles Times

“It feels like walking into a closet you haven’t been in in a while, looking for something you know is there, but you don’t know where. You just give up.…

Advancing Hope: AFTD and Registry Staff Attend International Dementia Conference

AFTD and FTD Disorders Registry staff attended the Alzheimer’s Association International Conference (AAIC) at the end of July in Toronto, Canada. The conference drew over 19,000 attendees and had a…

Dear HelpLine: AFTD’s Awareness Cards

Dear Helpline, When we’re out shopping, my loved one sometimes feels overwhelmed, and I worry people don’t realize their behavior is part of their condition. How can I support them…

FTD Science Digest: What happens when a Phase 3 clinical trial concludes?

You may know that a number of ongoing clinical trials are evaluating treatments with the potential to slow, or even stop, the progression of FTD. (Some of those trials are…

FTD Research Spotlight: Genetic FTD Trials Update – Approaching a Phase 3 Milestone

The FTD research landscape is on the verge of major developments. For the first time, a Phase 3 trial has been completed for a potentially disease-modifying treatment for a type…

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