The Association for Frontotemporal Degeneration

Helen-Ann Comstock

AFTD Founder

1933-2025

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Download a Diagnostic Checklist

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Leading FTD Expert Dr. Bruce Miller Interviewed on “Big Brains” Podcast

Bruce Miller, MD, was a recent guest of the University of Chicago podcast “Big Brains,” sharing his experiences observing people with FTD. He discussed the need for a new way…

Dementia Action Alliance Updated Guide - FBLI

Dementia Action Alliance Publishes Updated Guide to Living with Dementia

The organization Dementia Action Alliance (DAA) has released an updated version of “Pathways to Well-Being with Dementia,” a manual of practical tools, strategies, and insights to support well-being with dementia.…

Advancing Hope: Early-Career Awardees of AFTD Research Grants are Making Strides!

Did you know that AFTD currently has six active research grant programs funding FTD research at all stages, from discovery research to clinical trials? Three of these programs are focused…

HCP Landing Page - From Symptom Onset to Diagnosis

AFTD Webinar: From Symptom Onset to Diagnosis — Improving the FTD Diagnostic Journey

FTD’s complex symptomology means it is often misdiagnosed. This webinar explores what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early…

AFTD Grantee Study Assesses Protein Changes Which Could Help Track FTD Severity

A study published in Nature Aging looked at a large number of proteins in cerebrospinal fluid (CSF) to see if combinations of changes in these proteins could be used for…

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Late FTD Advocate Susan Suchan Spotlighted in New Documentary

Susan, a new full-length documentary about a woman diagnosed with FTD and the choices she and her family struggled with, is now available to stream. The film’s subject, Susan Suchan,…

Dear HelpLine: Resources for Genetic FTD

Dear HelpLine, I am 25 years old and I just learned my dad’s FTD is genetic. I’m planning to get married soon. Now that I know I may also be…

Advancing Hope: AFTD Announces 2025 Holloway Fellowship Recipients

Made possible thanks to the generous support of the Holloway Family Fund, AFTD’s Holloway Fellowships support the next generation of FTD researchers by providing two years of funding for innovative projects…

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