News & Events
Dear HelpLine: Navigating Financial Resources in FTD
Dear HelpLine, My husband was recently diagnosed with FTD, and we are now in a very difficult financial situation. He is no longer able to work and was the primary earner. How do we learn about financial resources, health insurance, and disability benefits? An FTD diagnosis can significantly impact financial stability, often when families are…
Advancing Hope: AFTD Announces 2026 Recipients of the Holloway Postdoctoral Fellowship
AFTD is pleased to announce the two newest recipients of research funding from the Holloway Postdoctoral Fellowship program, generously made possible by the AFTD Holloway Family Fund. The goal of the program is to support promising early-career scientists and clinicians who can shape the next generation of FTD research. Each of these researchers are receiving…
FTD Research Spotlight: Building a Research-Ready Community through the FTD Disorders Registry
Enrolling enough people in FTD studies remains one of the most persistent challenges in FTD research. Whether launching an observational study, a clinical trial, or seeking input from care partners and family members, connecting with the right participants at the right time can significantly impact study timelines and outcomes. The FTD Disorders Registry was created…
FTD Science Digest: Building a Research-Ready Community through the FTD Disorders Registry
Enrolling enough people in FTD studies remains one of the most persistent challenges in FTD research. Whether launching an observational study, a clinical trial, or seeking input from care partners and family members, connecting with the right participants at the right time can significantly impact study timelines and outcomes. The FTD Disorders Registry was created…
Advancing Hope: AFTD’s 2026 FTD Research Roundtable
Did you know AFTD hosts a year-long FTD Research Roundtable? It’s a dynamic forum with cross-sector engagement between industry, regulatory agencies, academia, and advocacy. The Roundtable dedicated to identifying and overcoming challenges in drug development for FTD. You can learn more about the FTD Research Roundtable on AFTD’s website. This year’s theme is Biomarker Strategies…
The Lived Experience of FTD: Tips for a Smoother Vacation
The following content was written by Anne Fargusson, RN. Anne is a member of the Persons with FTD Advisory Council – you can learn about Anne, her colleagues, and the work they do on our website. One of my favorite movies is “National Lampoon’s Christmas Vacation.” It’s a typical story how you thought Christmas should…
FTD, Genetic Risk, and Stigma: Lessons from Ray Howell’s Case
FTD touches every individual and family differently. While we see meaningful similarities across experiences, we also see significant differences, and no single story can fully reflect the realities of everyone in our community. However, the collection of many voices and lived experiences helps us better paint the picture of the complexity—and reinforces our shared determination…
Advancing Hope: AFTD Announces Recipient of AFTD Grant
AFTD is pleased to announce Jalayne Arias, JD, MA of Georgia State University, as a recipient of an AFTD grant for research. The funded work is entitled “Framework for Guidance on Study Partners in Dementia Research.” It aims to document different perspectives and investigate best practices for the use of study partners in FTD research.…