The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Thursday, June 26, 2025
12-1 p.m. EDT

HEALTHCARE PROFESSIONAL WEBINAR

Speech Language Therapy:

Stephanie M. Grasso

A Promising Practice in FTD Treatment and Care

Becky Khayum, M.S., CCC-SLP

Dr. Anna Volkmer

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Genetic FTD Advocate Linde Jacobs Profiled in CBS Minnesota Segment

Linde Jacobs, a Minnesota nurse who has devoted herself to genetic-FTD advocacy after learning that she and her sisters share the same MAPT mutation that caused her mother’s FTD, was…

Millennial Whose Father Has PSP Explains the Challenges Faced by Millennial Caregivers

When Jennifer N. Levin’s father was diagnosed with progressive supranuclear palsy, she was only 32 and living across the country, working long hours at her job in the television industry.…

AFTD Ambassador Shares Husband’s FTD Journey with West Virginia Newspaper

In a May 21 article published in the Charleston Gazette-Mail, AFTD Ambassador Debbie Elkins detailed her family’s FTD journey following the diagnosis of her husband, Chuck. She recounted the first…

AFTD Medical Advisor Emeritus Virginia Lee Elected to National Academy of Sciences

Virginia M.-Y. Lee, PhD, an emeritus member of the AFTD Medical Advisory Council (MAC) and the current director of the University of Pennsylvania’s Center for Neurodegenerative Disease Research, was elected…

Emma Heming Willis Honored with Caregiving Award

Emma Heming Willis was recently honored by Maria Shriver’s Women’s Alzheimer’s Movement (WAM) at Cleveland Clinic, receiving the organization’s Caregiving Award for her “outstanding work in advocating for unpaid family…

Session Videos from AFTD’s 2025 Education Conference Now Available

Sessions from AFTD’s 2025 Education Conference are now available on our YouTube channel. Whether you missed a session, you weren’t able to join us live in Denver or virtually, or…

Study Identifies Profile of Blood-Based Inflammatory Proteins as Potential FTD Biomarker

A study published in the journal Brain earlier this year identified a profile of inflammation-related proteins that could potentially serve as a FTD biomarker gauging the severity of the disease.…

Tips & Advice – Navigating FTD-ALS

In 2011, researchers discovered that variants of the C9orf72 gene are the most common cause of both genetic FTD and amyotrophic lateral sclerosis (ALS). Nevertheless, it is important to recognize…

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