News & Events
Hope on the Horizon: Daniel Barvin’s Personal Mission to Transform FTD Treatment
In 2017, Daniel Barvin was newly married, MBA in hand, and building a promising career in wealth management at Morgan Stanley. Then came the diagnosis that would reshape everything: He…
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Our Deepest Gratitude to Dr. Walter Koroshetz
The Association for Frontotemporal Degeneration extends its deepest gratitude to Dr. Walter Koroshetz for his 18 years of distinguished leadership of the National Institute of Neurological Disorders and Stroke (NINDS)…
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AFTD and partners award $2.1 million in first year of new FTD Diagnostic Biomarkers Initiative
The Association for Frontotemporal Degeneration (AFTD), Alzheimer’s Association, Rainwater Charitable Foundation, and the Robertson Foundation have come together to award three grants totaling $2.1 million on frontotemporal degeneration (FTD) diagnostic…
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Dear HelpLine: AFTD’s New Genetic Counseling and Testing Recommendation
Dear HelpLine, I recently heard about the new recommendation that all people diagnosed with FTD should be offered genetic counseling and testing. My husband was diagnosed 3 years ago. What…
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International Consortium Demonstrates Effectiveness of Large-Scale Protein Database in Study
An article published in Nature Medicine demonstrates the effectiveness of a large-scale dementia protein database composed of identically formatted and easily combinable data. The Global Neurodegeneration Proteomics Consortium (GNPC) database…
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Help & Hope in Review: The Top Articles of 2025
AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease the challenges you might face on the FTD journey. As we approach the end…
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Advancing Hope: Congratulations to AFTD Research Grant Awardees!
Did you know there are currently six active AFTD research grant programs to support FTD research at all stages, from discovery research to clinical trials? One of these programs is…
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AFTD Ambassador Carrie Edwards Shares Her Lottery Story on Tamron Hall
In a recent holiday episode of the Tamron Hall Show, AFTD Ambassador Carrie Edwards opened up about an extraordinary act of generosity that has touched hearts across the country. Edwards shared the…
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