degeneration of the frontal
and/or temporal lobes of the brain.
this journey alone.
and support for families facing FTD.
Initial Family Statement
Read about Emma Heming Willis' book tour
Learn more about FTD
Susan Dickinson to Retire in May 2026
Read the Full Report
News & Events
Advancing Hope: Successful 9th Annual FTD Social at the Society for Neuroscience Conference
Thank you to everyone who attended the 9th Annual FTD Social, hosted by AFTD at the Society for Neuroscience Conference in November! This year’s attendees represented current and previous grantees,…
MOREDear HelpLine: AFTD’s New Genetic Counseling and Testing Recommendation
Dear HelpLine, I recently heard about the new recommendation that all people diagnosed with FTD should be offered genetic counseling and testing. My husband was diagnosed 3 years ago. What…
MOREInternational Consortium Demonstrates Effectiveness of Large-Scale Protein Database in Study
An article published in Nature Medicine demonstrates the effectiveness of a large-scale dementia protein database composed of identically formatted and easily combinable data. The Global Neurodegeneration Proteomics Consortium (GNPC) database…
MOREHelp & Hope in Review: The Top Articles of 2025
AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease the challenges you might face on the FTD journey. As we approach the end…
MOREAdvancing Hope: Congratulations to AFTD Research Grant Awardees!
Did you know there are currently six active AFTD research grant programs to support FTD research at all stages, from discovery research to clinical trials? One of these programs is…
MOREAFTD Ambassador Carrie Edwards Shares Her Lottery Story on Tamron Hall
In a recent holiday episode of the Tamron Hall Show, AFTD Ambassador Carrie Edwards opened up about an extraordinary act of generosity that has touched hearts across the country. Edwards shared the…
MOREFrom Caregiver to Advocate: One Woman’s Mission to Transform FTD Support
When police knocked on Katie Brandt’s door in November 2008, she feared the worst. They told her that her husband Mike, then 29, had been clocked driving 90 miles an…
MOREThe Lived Experience of FTD: “Holiday Hacks” That Can Make the Season More Enjoyable
The following guest feature was written by Kevin Rhodes and other members of AFTD’s Persons with FTD Advisory Council. Members of the Council help guide AFTD on its mission for an FTD-free future. The holidays…
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