this journey alone.
and support for families facing FTD.
degeneration of the frontal
and/or temporal lobes of the brain.
What You Need to Know
that he has been diagnosed with FTD.
Statement
Statement
Resources
Action
provide a resource,
an outlet, and a place
to connect with others
who understand.
News & Events
Dementia Action Alliance Publishes Updated Guide to Living with Dementia
The organization Dementia Action Alliance (DAA) has released an updated version of “Pathways to Well-Being with Dementia,” a manual of practical tools, strategies, and insights to support well-being with dementia.…
MOREAdvancing Hope: Early-Career Awardees of AFTD Research Grants are Making Strides!
Did you know that AFTD currently has six active research grant programs funding FTD research at all stages, from discovery research to clinical trials? Three of these programs are focused…
MOREAFTD Webinar: From Symptom Onset to Diagnosis — Improving the FTD Diagnostic Journey
FTD’s complex symptomology means it is often misdiagnosed. This webinar explores what we know about the diagnostic journey by reviewing current data from the FTD Disorders Registry, including common early…
MOREAFTD Grantee Study Assesses Protein Changes Which Could Help Track FTD Severity
A study published in Nature Aging looked at a large number of proteins in cerebrospinal fluid (CSF) to see if combinations of changes in these proteins could be used for…
MORELate FTD Advocate Susan Suchan Spotlighted in New Documentary
Susan, a new full-length documentary about a woman diagnosed with FTD and the choices she and her family struggled with, is now available to stream. The film’s subject, Susan Suchan,…
MOREDear HelpLine: Resources for Genetic FTD
Dear HelpLine, I am 25 years old and I just learned my dad’s FTD is genetic. I’m planning to get married soon. Now that I know I may also be…
MOREAdvancing Hope: AFTD Announces 2025 Holloway Fellowship Recipients
Made possible thanks to the generous support of the Holloway Family Fund, AFTD’s Holloway Fellowships support the next generation of FTD researchers by providing two years of funding for innovative projects…
MOREAviadoBio and Astellas Senior Staff Discuss ASPIRE-FTD Trial in Interview
AviadoBio CEO Lisa Deschamps and Astellas senior vice president Richard Wilson discussed the ASPIRE-FTD clinical trial for FTD-GRN, challenges with the development and potential distribution of the AVB-101 gene therapy,…
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