News & Events

Advocacy Update: Protect FTD Research Today!

Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your advocacy to protect it. Earlier this month, the National Institutes of Health announced…

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FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research

An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways…

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The Lived Experience of FTD: FTD and Intimacy

In the following article, Anne Fargusson, RN, a member of the Persons with FTD Advisory Council, writes about intimacy and FTD. Intimacy can be an uncomfortable word. Years ago, when…

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Vesper Bio Clinical Trial for FTD-GRN Enters Phase Ib/IIa

Danish biotechnology company Vesper Bio announced in January that its clinical trial for a potentially disease-modifying drug for FTD-GRN is proceeding to phase Ib/IIa. In FTD caused by an inherited…

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Dear HelpLine: Home and Community Care Options

Dear HelpLine, My spouse has FTD. I have been caring for them in our home, and I’ve reached the point where I need more help. But I don’t even know…

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The Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD

When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave their job, usually long before they are ready to do so. The abrupt…

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Remember Me Podcast Discusses Grief with AFTD Staff in Recent Episode

In a special bonus episode of the “Remember Me” podcast, AFTD Support & Education Director Esther Kane, MSN, RN-CDP, and Support Services Manager Sarah Lopata, MS joined hosts Rachael Martinez…

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AFTD Webinar: Paving the Path Forward — Advancing AFTD’s Public Policy Priorities

Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this…

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