The Association for Frontotemporal Degeneration

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Thursday, July 31, 2025
3:00 - 4:00 p.m. ET

How to Connect with Legislators and Create Change

AFTD advocacy webinar

Sharing Your Story to Make a Difference:

Read the Full Plan

2025-2028

Paving the Path Forward:

Strategic Plan

Diagnosis and Treatment

Quality Care and Support

Advocacy and Awareness

Infrastructure and Sustainability

Since research is expanding so rapidly, AFTD is pleased to offer two ways for you to stay informed based on your level of scientific understanding.

Are you interested in staying up to date on FTD research?

Written for People on the FTD Journey Written for Researchers & Professionals

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Tips & Advice: Brain Health and FTD

While no treatments have yet been approved for any type of FTD, emerging research is beginning to suggest that carriers of FTD-causing gene variants may be able to slow its…

Genetic Counseling and Testing Should Be Offered to Persons Diagnosed with FTD, Experts Argue

A viewpoint article published in the medical journal Neurology argues that genetic counseling and testing should be offered to everyone diagnosed with FTD, underscoring the increasing number of trials for…

“Alzheimer’s & Dementia” Summarizes Inaugural Holloway Summit’s Discussions on Digital Health Technologies for FTD

An article published in the journal Alzheimer’s & Dementia arose from AFTD’s inaugural Holloway Summit in 2022, which focused on digital health technologies (DHTs) and how they can help diagnose…

Passage Bio Provides Updated Interim Data from UpliFT-D Clinical Trial for FTD-GRN

Biotechnology firm Passage Bio recently provided updated interim data from its phase 1/2 clinical trial for its gene replacement therapy targeting FTD-GRN. Experimental Therapy Continues to Show Improved Progranulin Levels…

PBS Documentary Spotlights FTD Couple to Exemplify U.S. “Caregiving Crisis”

Caregiving, a new PBS documentary executive-produced by Bradley Cooper, reveals America’s caregiving crisis through expert insight and intimate stories – including the story of a couple facing FTD. In the…

Florida Radio Station Spotlights AFTD Ambassador for His Dementia-Care Advocacy

AFTD Ambassador Dan Moser was interviewed last month about his work supporting FTD caregiving on the radio program Gulf Coast Life, which airs on the Fort Myers, Fla.–based NPR station…

In Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief

When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart…

The Lived Experience of FTD: Brothers Explain in Podcast How They Live With Gene Linked to FTD

In a recent interview with NPR member station WUNC, for their podcast “Embodied,” brothers Ansel Dow, 31, and Cosmo Hinsman, 26, discussed the devastating impact of genetic FTD on their…

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