this journey alone.
and support for families facing FTD.
degeneration of the frontal
and/or temporal lobes of the brain.
What You Need to Know
that he has been diagnosed with FTD.
Statement
Statement
Resources
Action
3:00 - 4:00 p.m. ET
provide a resource,
an outlet, and a place
to connect with others
who understand.
News & Events
Genetic Counseling and Testing Should Be Offered to Persons Diagnosed with FTD, Experts Argue
A viewpoint article published in the medical journal Neurology argues that genetic counseling and testing should be offered to everyone diagnosed with FTD, underscoring the increasing number of trials for…
MORE“Alzheimer’s & Dementia” Summarizes Inaugural Holloway Summit’s Discussions on Digital Health Technologies for FTD
An article published in the journal Alzheimer’s & Dementia arose from AFTD’s inaugural Holloway Summit in 2022, which focused on digital health technologies (DHTs) and how they can help diagnose…
MOREPassage Bio Provides Updated Interim Data from UpliFT-D Clinical Trial for FTD-GRN
Biotechnology firm Passage Bio recently provided updated interim data from its phase 1/2 clinical trial for its gene replacement therapy targeting FTD-GRN. Experimental Therapy Continues to Show Improved Progranulin Levels…
MOREPBS Documentary Spotlights FTD Couple to Exemplify U.S. “Caregiving Crisis”
Caregiving, a new PBS documentary executive-produced by Bradley Cooper, reveals America’s caregiving crisis through expert insight and intimate stories – including the story of a couple facing FTD. In the…
MOREFlorida Radio Station Spotlights AFTD Ambassador for His Dementia-Care Advocacy
AFTD Ambassador Dan Moser was interviewed last month about his work supporting FTD caregiving on the radio program Gulf Coast Life, which airs on the Fort Myers, Fla.–based NPR station…
MOREIn Podcast Interview, AFTD Ambassador Shares How He Found Purpose Amid Grief
When Scott Oxarart lost his father Steve to FTD in August 2023, he transformed his grief into a powerful mission to help other families navigate the challenges he faced. Oxarart…
MOREThe Lived Experience of FTD: Brothers Explain in Podcast How They Live With Gene Linked to FTD
In a recent interview with NPR member station WUNC, for their podcast “Embodied,” brothers Ansel Dow, 31, and Cosmo Hinsman, 26, discussed the devastating impact of genetic FTD on their…
MOREThe Road to Timely and Accurate FTD Diagnosis
Accurate, early FTD diagnosis is crucial – for appropriate care, improved quality of life and disease management, adequate support for caregivers, better informed decisions around family planning, and access to…
MORE