News & Events

International Consortium Demonstrates Effectiveness of Large-Scale Protein Database in Study

An article published in Nature Medicine demonstrates the effectiveness of a large-scale dementia protein database composed of identically formatted and easily combinable data. The Global Neurodegeneration Proteomics Consortium (GNPC) database…

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Help & Hope in Review: The Top Articles of 2025

AFTD is committed to ensuring Help & Hope delivers informative articles and practical resources to ease the challenges you might face on the FTD journey. As we approach the end…

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Advancing Hope: Congratulations to AFTD Research Grant Awardees!

Did you know there are currently six active AFTD research grant programs to support FTD research at all stages, from discovery research to clinical trials? One of these programs is…

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AFTD Ambassador Carrie Edwards Shares Her Lottery Story on Tamron Hall

In a recent holiday episode of the Tamron Hall Show, AFTD Ambassador Carrie Edwards opened up about an extraordinary act of generosity that has touched hearts across the country. Edwards shared the…

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From Caregiver to Advocate: One Woman’s Mission to Transform FTD Support

When police knocked on Katie Brandt’s door in November 2008, she feared the worst. They told her that her husband Mike, then 29, had been clocked driving 90 miles an…

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The Lived Experience of FTD: “Holiday Hacks” That Can Make the Season More Enjoyable 

The following guest feature was written by Kevin Rhodes and other members of AFTD’s Persons with FTD Advisory Council. Members of the Council help guide AFTD on its mission for an FTD-free future.  The holidays…

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GemVax & KAEL Announces Results from Phase 2 PSP Study

South Korean biopharmaceutical company GemVax & Kael announced the results from its Phase 2 clinical trial of a potential drug for progressive supranuclear palsy Richardson’s syndrome (PSP-RS, a PSP subtype).…

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AFTD Director of Research Engagement Shana Dodge Presents at 2025 NORD Breakthrough Summit Lightning Round

AFTD Director of Research Engagement Shana Dodge, PhD, presented on an AFTD-hosted industry advisory panel during the 2025 National Organization of Rare Disorders (NORD) Breakthrough Summit Lightning Round. Dr. Dodge’s…

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