degeneration of the frontal
and/or temporal lobes of the brain.
this journey alone.
and support for families facing FTD.
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News & Events
Dear HelpLine: Navigating Financial Resources in FTD
Dear HelpLine, My husband was recently diagnosed with FTD, and we are now in a very difficult financial situation. He is no longer able to work and was the primary…
MORE about Dear HelpLine: Navigating Financial Resources in FTDAdvancing Hope: AFTD Announces 2026 Recipients of the Holloway Postdoctoral Fellowship
AFTD is pleased to announce the two newest recipients of research funding from the Holloway Postdoctoral Fellowship program, generously made possible by the AFTD Holloway Family Fund. The goal of…
MORE about Advancing Hope: AFTD Announces 2026 Recipients of the Holloway Postdoctoral FellowshipFTD Research Spotlight: Building a Research-Ready Community through the FTD Disorders Registry
Enrolling enough people in FTD studies remains one of the most persistent challenges in FTD research. Whether launching an observational study, a clinical trial, or seeking input from care partners…
MORE about FTD Research Spotlight: Building a Research-Ready Community through the FTD Disorders RegistryFTD Science Digest: Building a Research-Ready Community through the FTD Disorders Registry
Enrolling enough people in FTD studies remains one of the most persistent challenges in FTD research. Whether launching an observational study, a clinical trial, or seeking input from care partners…
MORE about FTD Science Digest: Building a Research-Ready Community through the FTD Disorders RegistryAdvancing Hope: AFTD’s 2026 FTD Research Roundtable
Did you know AFTD hosts a year-long FTD Research Roundtable? It’s a dynamic forum with cross-sector engagement between industry, regulatory agencies, academia, and advocacy. The Roundtable dedicated to identifying and…
MORE about Advancing Hope: AFTD’s 2026 FTD Research RoundtableThe Lived Experience of FTD: Tips for a Smoother Vacation
The following content was written by Anne Fargusson, RN. Anne is a member of the Persons with FTD Advisory Council – you can learn about Anne, her colleagues, and the…
MORE about The Lived Experience of FTD: Tips for a Smoother VacationFTD, Genetic Risk, and Stigma: Lessons from Ray Howell’s Case
FTD touches every individual and family differently. While we see meaningful similarities across experiences, we also see significant differences, and no single story can fully reflect the realities of everyone…
MORE about FTD, Genetic Risk, and Stigma: Lessons from Ray Howell’s CaseAdvancing Hope: AFTD Announces Recipient of AFTD Grant
AFTD is pleased to announce Jalayne Arias, JD, MA of Georgia State University, as a recipient of an AFTD grant for research. The funded work is entitled “Framework for Guidance…
MORE about Advancing Hope: AFTD Announces Recipient of AFTD Grant