News & Events
FTD Research Spotlight: Building a Research-Ready Community through the FTD Disorders Registry
Enrolling enough people in FTD studies remains one of the most persistent challenges in FTD research. Whether launching an observational study, a clinical trial, or seeking input from care partners…
FTD Science Digest: Building a Research-Ready Community through the FTD Disorders Registry
Enrolling enough people in FTD studies remains one of the most persistent challenges in FTD research. Whether launching an observational study, a clinical trial, or seeking input from care partners…
Advancing Hope: AFTD’s 2026 FTD Research Roundtable
Did you know AFTD hosts a year-long FTD Research Roundtable? It’s a dynamic forum with cross-sector engagement between industry, regulatory agencies, academia, and advocacy. The Roundtable dedicated to identifying and…
The Lived Experience of FTD: Tips for a Smoother Vacation
The following content was written by Anne Fargusson, RN. Anne is a member of the Persons with FTD Advisory Council – you can learn about Anne, her colleagues, and the…
FTD, Genetic Risk, and Stigma: Lessons from Ray Howell’s Case
FTD touches every individual and family differently. While we see meaningful similarities across experiences, we also see significant differences, and no single story can fully reflect the realities of everyone…
Advancing Hope: AFTD Announces Recipient of AFTD Grant
AFTD is pleased to announce Jalayne Arias, JD, MA of Georgia State University, as a recipient of an AFTD grant for research. The funded work is entitled “Framework for Guidance…
Volunteer Update: Sixteen New Volunteers Help Expand FTD Awareness Nationwide
In the past few months, 16 fresh volunteers have visited 57 healthcare providers, staffed AFTD tables at community resource fairs in five states, reviewed educational materials, and thanked donors through…
Welcoming Rachel Biblow as AFTD’s New CEO
Rachel Biblow officially began her tenure as AFTD’s new Chief Executive Officer this May, bringing with her decades of experience in health care transformation, patient and family engagement, and mission-driven…