The Association for Frontotemporal Degeneration

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Denver, CO

AFTD 2025
Education Conference

Connect · Learn · Engage

May 1-2, 2025

You don't have to take
this journey alone.

AFTD offers reliable information, resources,
and support for families facing FTD.

Find Support Managing FTD Newly Diagnosed

FTD is caused by
degeneration of the frontal
and/or temporal lobes of the brain.

It's the most common form of dementia for people under 60.

What is FTD?

Learn More

Diagnostic Information

Bruce Willis & FTD:
What You Need to Know

Bruce Willis’s family has announced
that he has been diagnosed with FTD.

Willis Family
Statement

AFTD
Statement

FTD Info &
Resources

Take
Action

Wednesday, February 26, 2025 | 4-5 p.m. ET

HEALTHCARE PROFESSIONAL WEBINAR

At the Intersection of FTD and the Law

Chief of the Division of Behavioral and Cognitive Neurology, Director of the Frontotemporal Dementia Clinic, and Assistant Professor of Neurology at Vanderbilt University Medical Center

Richard Ryan Darby, MD

Support groups
provide a resource,
an outlet, and a place
to connect with others
who understand.

Find Support Near You

Learn More

Newly diagnosed? Concerned about potential symptoms? Get the information you need.

Find Help

Resources for Diagnosis Support Groups

Email our HelpLine

News & Events

Passage Bio Announces Interim Data for UpliFT-D Trial for FTD-GRN

Biotechnology company Passage Bio released interim data for its upliFT-D clinical trial for its gene replacement therapy for FTD-GRN and announced that it is on track to expand the trial…

Advocacy Update: Protect FTD Research Today!

Calling all AFTD advocates – federal funding for FTD research is at risk, and we need your advocacy to protect it. Earlier this month, the National Institutes of Health announced…

FTD Researchers Call for Greater Focus on Diversity to Address Disparities in Care and Research

An article published in the journal Alzheimer’s & Dementia identifies gaps in current FTD research caused by disparities in access to proper dementia care and research centers, and outlines ways…

Text: FTD and Intimacy, by Anne Fargusson, RN | Background: A couple holds hands while they have a discussion

The Lived Experience of FTD: FTD and Intimacy

In the following article, Anne Fargusson, RN, a member of the Persons with FTD Advisory Council, writes about intimacy and FTD. Intimacy can be an uncomfortable word. Years ago, when…

Vesper Trial Enters Phase IbIIa - FB LI TW

Vesper Bio Clinical Trial for FTD-GRN Enters Phase Ib/IIa

Danish biotechnology company Vesper Bio announced in January that its clinical trial for a potentially disease-modifying drug for FTD-GRN is proceeding to phase Ib/IIa. In FTD caused by an inherited…

Dear HelpLine: Home and Community Care Options

Dear HelpLine, My spouse has FTD. I have been caring for them in our home, and I’ve reached the point where I need more help. But I don’t even know…

Text: Managing the Emotional Impact of Job Loss in FTD by Kevil Rhodes, Co-Chair, AFTD Persons with FTD advisory Council | Background: A photo of AFTD Advisory Council Co-Chair Kevil Rhodes

The Lived Experience of FTD: Managing the Emotional Impact of Job Loss in FTD

When someone is diagnosed with FTD, it is almost guaranteed that they will eventually have to leave their job, usually long before they are ready to do so. The abrupt…

Remember Me Podcast Discusses Grief with AFTD Staff in Recent Episode

In a special bonus episode of the “Remember Me” podcast, AFTD Support & Education Director Esther Kane, MSN, RN-CDP, and Support Services Manager Sarah Lopata, MS joined hosts Rachael Martinez…

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