News & Events

AFTD Webinar: Paving the Path Forward — Advancing AFTD’s Public Policy Priorities

Families living with FTD have significant unmet needs: access to quality dementia care, policies that are friendlier to unpaid caregivers, and a deeper public investment into disease-modifying treatments. In this…

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Upcoming UCSF Trial to Evaluate Effectiveness of Three Drugs for PSP

An upcoming clinical trial conducted by the University of California, San Francisco (UCSF) will simultaneously evaluate multiple drugs to determine their effectiveness against progressive supranuclear palsy. The trial has been…

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Making a Difference: AFTD Introduces First-Ever Advocacy Agenda

AFTD has unveiled a robust and ambitious advocacy agenda for 2025, emphasizing the urgent need to better support families facing FTD while pushing for deeper public investments into FTD research…

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In TEDx Talk, Neuroscientist Shares Her Father’s FTD Story and Her Hope for Dementia Research Breakthroughs

Leila Allen, PhD, of Florida International University (FIU), discussed the groundbreaking dementia research that she and her colleagues are performing with pig models and artificial intelligence during a recently published…

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Extracellular Vesicles in Plasma Could be FTD-ALS Diagnostic Biomarker, Study Finds

A study published in Nature Medicine finds that a type of particle associated with specific cell subtypes could potentially be utilized as a biomarker for FTD and ALS disorders. The…

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Denali and Takeda Open FTD-GRN Clinical Trial Site at UPenn

Denali Therapeutics and Takeda Pharmaceutical Company’s phase 1/2 clinical trial for FTD caused by GRN mutations is opening its first U.S.-based trial site at the University of Pennsylvania (UPenn). The…

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Tips & Advice: Incontinence – A Troubling Symptom

Incontinence is a common symptom of FTD and other dementias. But for both care partners and persons diagnosed, incontinence can be one of the more difficult symptoms to manage or even…

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Ohio Care Partner Shares Story to Help Others on the FTD Journey

Mary Kay Verhoff, a former FTD care partner from Ohio, recently published a book that tells the story of coming to terms with and navigating her husband’s decline from FTD.…

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