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AFTD Webinar: Diagnosing Primary Progressive Aphasia

With primary progressive aphasia (PPA), problems with language and communication typically deteriorate gradually over time. Initial symptoms are sometimes attributed to anxiety or stress until the ongoing symptoms become disruptive…

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Tell Your Legislators: Reauthorize Funding for the Older Americans Act

You may think that because frontotemporal degeneration strikes many people in the middle of their life, that the Older Americans Act may not apply to you. But the OAA provides…

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Advancing Hope: AFTD hosts 2024 FTD Research Roundtable Meeting

The FTD Research Roundtable is an annual program designed to accelerate FTD drug development by convening various scientific stakeholders to identify common challenges and advance solutions for FTD clinical trials.…

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AC Immune and Life Molecular Imaging Announce FDA Fast Track Designation for Tau PET Tracer

Swiss biopharmaceutical company AC Immune announced in late August that its partner, German biopharmaceutical company Life Molecular Imaging (LMI), received a Fast Track Designation from the US Food and Drug…

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Emma Heming Willis Shares Her FTD Experience and Advocacy Work in “Town & Country” Magazine

Emma Heming Willis spoke with journalist Katie Couric about her journey as an FTD care partner, as well as her advocacy for FTD legislation and research following the diagnosis of…

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Advancing Hope: AFTD Attends Tau Consortium Investigators Meeting

Members of the AFTD staff, along with several funding partner organizations, gathered with the world’s top scientists studying tauopathies for the 2024 Tau Consortium Investigators Meeting (TCIM) this September in…

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Tips and Advice: Understanding Ambiguous Loss and Anticipatory Grief

Andy Atwood, a retired psychotherapist and clergyman, knows about grief. In addition to working as a grief counselor, he experienced grief firsthand after the 2021 death of his beloved younger…

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Young Woman Tells Her Family’s FTD Story on Philadelphia News Segment

FTD care partner Hannah Clarke was interviewed on October 15 for a segment on Good Day Philadelphia about her experiences caring for her mother, Claudine, who is living with an…

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