In-Person Meet & Greet in Reno, NV
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event hosted by AFTD Ambassador Scott Oxarart. Please RSVP to Scott at soxarart@theaftd.org. To learn more, download this flyer.
consulte Mais informaçãoAstellas e AviadoBio anunciam acordo de licença exclusiva para terapia genética FTD-GRN
Astellas Pharma and AviadoBio have announced an exclusive license agreement for AVB-101, an experimental gene therapy for FTD-GRN currently undergoing a phase 1/2 clinical trial in the United States and Europe. FTD caused by an inherited GRN genetic mutation inhibits the production of the essential protein progranulin, which leads to the accumulation of proteins such…
consulte Mais informação9 de novembro de 2024: FTD e Young Onset Meet & Greet em San Diego, CA
Join Alzheimer’s San Diego, For Their Thoughts Foundation, and AFTD for an informal Meet & Greet, have your questions answered, and learn more about the services and support the three organizations provide. The event will be held from 10:00 – 11:00 a.m. PT in at Alzheimer’s San Diego Community Room, Suite 300 (3635 Ruffin Road).…
consulte Mais informaçãoFTD and Young Onset Meet & Greet in San Diego, CA
Join Alzheimer’s San Diego, For Their Thoughts Foundation, and AFTD for an informal Meet & Greet, have your questions answered, and learn more about the services and support the three organizations provide. RSVP for this event by emailing caretrain@gmail.com. To learn more, download this flyer.
consulte Mais informaçãoAlzheimer’s Association North Idaho Caregiver Conference
AFTD Ambassador Joanne Linerud will be hosting an information table at the Alzheimer’s Association North Idaho Caregiver Conference on November 8, 2024, from 9 AM – 2 PM PDT at the Student Union Building of North Idaho College. This free event for care partners will feature guidance from dementia experts, a Q&A panel, as well as…
consulte Mais informaçãoAtualização de voluntários: comemorando o crescimento da conscientização sobre a DFT
It is not often that the community comes together in person, so it was extra special when AFTD Ambassadors Melissa Fisher and Scott Rose organized a gathering in Portland to celebrate the new Oregon state awareness proclamation. The proclamation establishing September 22-29, 2024, as FTD Awareness Week was signed by Governor Tina Kotek on August…
consulte Mais informaçãoAvançando a esperança – AFTD participa da conferência da Sociedade Internacional para FTD de 2024
The AFTD was proud to have ten staff members, and four Board members attend the International Society for FTD Conference (ISFTD) in Amsterdam in late September. This is a premier bi-annual conference convening approximately 800 leading experts in FTD – including researchers, clinicians, drug developers, advocates, and people with lived experience. The AFTD Programs team…
consulte Mais informaçãoConferência anual de cuidadores do Penn FTD Center de 2024: nutrindo nossos cuidadores
AFTD staff will be hosting an informational table at the Penn FTD Center’s 2024 Caregiver Conference, titled Nurturing Our Caregivers, being held Monday, November 18, 2024 from 8:30 AM – 3:30 PM. The conference is an opportunity for people diagnosed with FTD, their care partners, family, and friends to learn more about FTD and the resources…
consulte Mais informaçãoEstudo descobre que FTD e ALS têm características celulares e moleculares semelhantes
Um estudo realizado por pesquisadores do MIT e da Mayo Clinic publicado no periódico Cell descobriu que a DFT e a ELA têm características celulares e moleculares notavelmente semelhantes, apesar de suas diferenças clínicas. A descoberta de 2011 de que a mutação do gene C9orf72 pode causar DFT e/ou ELA transformou a crença antiga de que os dois distúrbios não tinham relação. Agora é…
consulte Mais informaçãoO poder da advocacia
A AFTD gostaria de destacar o poder da advocacia em contribuir para uma maior conscientização sobre a DFT. A World FTD Awareness Week deste ano foi repleta de contribuições grandes e pequenas de defensores que dedicaram seu tempo para criar eventos de conscientização e arrecadação de fundos, que postaram sobre a DFT e a AFTD nas mídias sociais e que trabalharam com seus legisladores…
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