Empower Help & Hope this #Giving Tuesday

Michele Howerter, whose mom Nancy is living with primary progressive aphasia, is sharing her family’s story for Giving Tuesday – a day to recognize and support mission-focused organizations worldwide. AFTD will once again participate in this annual campaign to raise awareness of FTD and funds to drive our work on behalf of all facing this…

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Advancing Hope: Sponsored Testing Programs; opportunities for no-cost genetic testing

Text: Advancing Hope - Sponsored Testing Programs; opportunities for no-cost genetic testing. Background: A doctor consults with a patient

Once you have chosen to pursue genetic testing, it can be frustrating to learn that the cost is too high, or insurance will not cover genetic testing. Sponsored testing programs (STPs) provide the opportunity to access genetic testing at no-cost, removing financial barriers and enabling greater access to genetic counseling and testing. STPs are collaborations…

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Ferrer Doses Primeiro Participante em Estudo de Fase 2 para Tratamento de PSP

Text: Ferrer Doses First Participant in Phase 2 Study for PSP Treatment. Background: A person pours pills into another person's hand.

Pharmaceutical company Ferrer announced that it has dosed the first participant in the PROSPER phase 2 clinical trial for an experimental treatment for progressive supranuclear palsy. The ongoing trial seeks to evaluate the safety and efficacy of the drug FNP-223, which is designed to slow the progression of the disease. The drug works to prevent…

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Tudo em família para acabar com o FTD: o evento Food for Thought da Colonial Electric arrecada mais de $1 milhões desde o início

Patricia "Trish" Bellwoar, who had FTD, smiles as she sits in a wheelchair being pushed by her husband, Joseph Bellwoar.

AFTD Board alumnus, Steve Bellwoar, has raised more than $1 million to drive AFTD’s mission in memory of his mother. Patricia “Trish” Bellwoar died in 2021 after living with FTD for nearly 30 years. Since Steve’s initial Colonial Electric Food for Thought gathering in 2014, the event, which features a nine-hole golf tournament, cocktail hour,…

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Uma conversa com um neurologista da Denali Therapeutics

Graphic: A Conversation with a Neurologist at Denali Therapeutics. Background: A photo of Dr. Richard Tsai

Recently, AFTD had a conversation with members of the Denali Therapeutics team, including Dr. Richard Tsai, to provide insights into their work to develop a therapeutic with Takeda to treat FTD-GRN (frontotemporal dementia caused by GRN gene mutations). Dr. Tsai is a neurologist at Denali where he partners with other scientists to design and conduct…

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Graças à generosidade do embaixador da AFTD, os californianos recebem ajuda financeira crucial

AFTD Ambassador Terry Walter, of California, smiles in front of a red AFTD banner that says Every FTD Story Counts.

Terry Walter, an AFTD Ambassador in California and Nevada, has been a force for positive change and support since 2008, when she began volunteering for AFTD. Over the years she has organized golf tournaments, convened people affected by FTD through her Meet & Greet events, and raised funds for AFTD’s mission with her annual Food…

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Webinar da série de aprendizagem do parceiro de cuidados AFTD: navegando nas férias com um diagnóstico de FTD

The changes brought on by an FTD diagnosis can make navigating the holidays difficult. The routine changes of travel, large crowds, and busy days can lead to unsuccessful holiday experiences. In this webinar, AFTD HelpLine Manager Stephanie Quigley leads a discussion with members of AFTD’s Persons with FTD Advisory Council as they share ideas and…

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AFTD Advocacy: Treinamento em Resolução Estadual

Este treinamento cobrirá o processo de como obter uma resolução — desde a identificação de seus legisladores até o recebimento de sua resolução aprovada. Ele também cobrirá estratégias de imprensa para maximizar a visibilidade e promover mais conscientização sobre o FTD em seu estado. Os participantes receberão e revisarão: Kit de ferramentas de resolução de 2025 Linguagem de resolução Kit de ferramentas de imprensa Falando de advocacia…

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