Guest Feature: “Yes, and…” by Catherine Savini
Navigating the symptoms of FTD can be difficult for loved ones, especially when someone living with the disease experiences memory-related challenges. However, as Catherine Savini shares, meeting symptoms with “yes, and” instead of “no, because” can turn encounters with frustration and isolation into meaningful moments of playfulness and connection. Recently, a close friend was telling me a…
consulte Mais informaçãoQuando uma voz soa como um coro: a campanha implacável de Dawn Kirby para aumentar a conscientização sobre a DFT
Dawn Kirby and her husband, Tim, are getting the word out about FTD. The couple were recently featured in an article in the Prairie Press (Paris, Ill.), where they talked about their advocacy on behalf of FTD awareness. Dawn and Tim have fond memories of watching their daughter, Kara Ike, come into her own in…
consulte Mais informação26 de outubro de 2024: Encontro pessoal em Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jeanne Cestone, taking place from 10:30-11:30 a.m. on Saturday, October 26, 2024. The event will be held at the Appoquinimink Community Library in Middletown, Del. (204 E. Main Street). RSVP for this event…
consulte Mais informaçãoIn-Person Meet & Greet in Middletown, DE
Join and learn from others who understand the FTD journey at this in-person AFTD Meet & Greet event, hosted by AFTD volunteer Jeanne Cestone. RSVP for this event by emailing jeanne_ve_c@yahoo.com. To learn more, download this flyer.
consulte Mais informaçãoUnderstanding Dementia With a Focus on Alzheimer’s & Frontotemporal Dementia (FTD)
AFTD Ambassador Dawn O’Gara will be joining representatives of the Alzheimer’s Association to hold a virtual presentation on FTD and Alzheimer’s disease on Tuesday, October 29, 2024 from 6:00 PM – 7:00 PM EDT. The presentation will provide participants with the opportunity to learn about the signs and symptoms of FTD and Alzheimer’s, and the resources available…
consulte Mais informaçãoSubaru Compartilhe o Evento do Amor 2024
In memory of Georgi Sidoris, Scott Campbell of Subaru of Muskegon designated AFTD as one of their Hometown Charities for the 2024 Subaru Share the Love Event. This event will take place from November 21-January 2 and during the event, for every new Subaru that this dealership sells or leases, $75 will be donated to…
consulte Mais informaçãoDemência é o inferno: cruzeiro de carro pelo Hells Canyon
AFTD Ambassador Scott Rose is hosting a car cruise on Labor Day weekend 2025 in Portland Oregon to raise funds and FTD awareness. The cruise will be a beautiful 5 to 6 hour drive on the Hells Canyon Scenic Byway and is open to both clubs and individuals. Preregistration will include a t-shirt, AFTD info,…
consulte Mais informaçãoVoluntário da AFTD garante 3 proclamações da Semana de Conscientização sobre FTD em Ohio
Lima, Ohio is the most recent community to officially proclaim September 22-29 as FTD Awareness Week. Resident Jack George successfully advocated for the official proclamation, which Lima Mayor Sharetta Smith presented on September 4th at a public meeting. George feels strongly about advocating for FTD awareness because of his own circuitous diagnosis journey. “It took…
consulte Mais informaçãoAvançando a esperança: AFTD hospeda painel consultivo da indústria
Em 8 e 9 de agosto, a AFTD sediou um painel consultivo da indústria no qual um grupo de pessoas cujas vidas foram tocadas pela FTD compartilharam suas experiências e perspectivas com empresas que trabalham em potenciais tratamentos para FTD. O painel incluiu pessoas diagnosticadas com FTD, parceiros de cuidados atuais e antigos e familiares biológicos de pessoas com…
consulte Mais informaçãoArtigo de Convidado: A Jornada de uma Mulher – do Diagnóstico à Tentativa de Suicídio e à Adoção da Vida
Setembro é o mês de prevenção ao suicídio. Abaixo, Deb Jobe, membro do Conselho Consultivo de Pessoas com DFT da AFTD, corajosamente compartilha a história de sua tentativa de suicídio após um diagnóstico de DFT, e como ela voltou de querer acabar com sua vida para abraçá-la completamente. Enquanto estou sentada aqui no meu quintal sentindo o calor do sol, observando...
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