For primary care partners who cannot access a local or regional support group, AFTD offers national Zoom support groups: two are focused on FTD’s behavioral symptoms, and one is focused on language symptoms. (A primary care partner is the person most involved with supporting the person diagnosed; they may also be the person’s designated decision-maker.)

To find out more about these groups, reach out to the AFTD HelpLine.

AFTD also offers national Zoom support groups for primary care partners and family members in these specific caregiving situations:

To find out more about these groups, reach out to the AFTD HelpLine or visit the FTD Support Group Locator.

AFTD sponsors two monthly Zoom support groups for young adults (ages 17-26 and ages 24-40) who have a parent with FTD, and another monthly group for adult children (40+) who have a parent with FTD. To find out more about these options, reach out to the AFTD HelpLine or visit the FTD Support Group Locator.

AFTD’s closed Facebook group is another way to connect with care partners, persons diagnosed, and others with a connection to FTD. Members can post about their own experiences and respond to discussion items in the Facebook group. People with individual questions about FTD or managing care can reach out to the AFTD HelpLine.

AFTD has also established a young-adult Facebook group for people in their 20’s and 30’s who have a family member or loved one with FTD. We hope this group offers a supportive environment where people can feel comfortable sharing their feelings and experiences. This is considered a “secret” group, and thus cannot be found by searching on Facebook. To learn more, please email youngadults@theaftd.org.

The landscape of support is always evolving as more support groups form and more opportunities become available on social media. Reaching out to the AFTD HelpLine team can assist in finding the group that best fits your needs. Please call or email the HelpLine at 866-507 7222 or info@theaftd.org.