AFTD has just launched a new page designed to simplify your search for answers. We added an FTD Support Group and Diagnostic Center Locator, which includes a map that allows you to search anywhere in the United States, and clickable icons reveal the details for each location.

The interactive map displays:

• Support Groups (local, regional, or national), which meet once a month and are led by AFTD-trained volunteers or organizations who understand FTD. They foster supportive group discussions regarding approaches to care, changing relationships, safety, local resources, grief, self-care, etc.
• FTD Diagnostic Centers that can help with diagnosis, guidance, and connections to research opportunities. The professionals affiliated with these centers are among the most experienced in diagnosing and treating FTD.

New Support Groups

The new page also includes a dynamic list of national Zoom-based support groups categorized by variant and care partner characteristics, as well as two groups for people with FTD.

AFTD is has introduced three new support groups:

• The LGBTQIA+ Caregiver Support Group meets every 3rd Thursday of the month, from 6:30-7:30 p.m. ET. LGBTQIA+ people living with or caring for a loved one with FTD face compounding stressors unique to their population. AFTD is committed to providing a safe, affirming environment to access resources and psychosocial support for care partners while navigating the FTD journey, with people who understand their lived experiences.
• The Care Partners of People with PSP Experiencing FTD Behaviors (AFTD & CurePSP) Support Group meets every 2nd Wednesday of the month, from 6-7 p.m. ET. In a joint affiliation, AFTD and CurePSP will offer a dedicated space for care partners whose loved one has received a diagnosis of PSP and is also experiencing the behavioral changes of FTD and/or has been diagnosed with PSP-FTD. And official FTD diagnosis is not required to join this group.
• The Living Well with PPA Support Program begins September 21, 2024. Are you newly diagnosed with PPA? A new diagnosis can leave people seeking a place to process and learn together. Facilitated by two AFTD Support Group Volunteers, this six-week program creates space and a supportive environment to discuss aspects of living well with PPA. Topics will include an overview of PPA, values, understanding grief, etc.

FTD is a complex disease with emotional and practical challenges that can be overwhelming and isolating. Support groups share helpful resources and offer you a safe space to share your thoughts with others who understand.

“I went to the FTD support group for the first time last night and came back feeling so much better…with so many answered questions. I now feel like I’m not alone.” Sandy, TX