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Advocacy Update: AFTD Board Members and CEO Help BEYONDD Study Secure Partnership of New York State Sen. Cordell Cleare

AFTD CEO Susan L-J Dickinson and Board members Donald E. Newhouse and Kathy Newhouse Mele helped to…

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Help & Support: Guidance for Advance Care Planning

Completing advance care planning documents such as living wills, healthcare advance directives, or healthcare power of attorney…

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Advancing Hope: What is Familial FTD?

When a relative is diagnosed with FTD, the AFTD HelpLine is often asked, “Could I also develop…

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The Lived Experience: Brain Donation

By Cindy Odell I was diagnosed with bvFTD more than ten years ago. My immediate reaction was…

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Guest Feature: “Until We Knew, Twice: Life With MND/ALS and FTD” Shares a Story of Love and Grief on the FTD Journey

The FTD journey can be an isolating experience; it can often feel like nobody knows what you…

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March’s Athlete of the Month: Lynne Lewis

Our Charity Miles Athlete of the Month for March is Lynne Lewis from Pennsylvania. Lynne uses the…

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Advocacy Update: AFTD Ambassador Corey Esannason Meets with Staff from State Senator Andrea Stewart-Cousins’ Office

On March 3 AFTD Ambassador Corey Esannason met with staff from New York State Senator Andrea Stewart-Cousins’ office….

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Tips & Advice: Aggressive Behavior and FTD

One of FTD’s more troubling symptoms is the emergence of uncharacteristically aggressive behavior. Every case of FTD…

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Tips & Advice: Dealing with Feelings of Grief Following the Bruce Willis Diagnosis

The news last week that beloved actor Bruce Willis is living with FTD has sparked a surge…

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You’re Invited to AFTD’s 2023 Education Conference

Are you a person with FTD? Are you unsure how this came about for you? Are you…

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