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Help & Hope
Guest Feature: That Picture, That Movie, That Song – Connecting with My Dad Beyond FTD
FTD can distort one’s personality and behavior in unpredictable and upsetting ways, and it can be hard…
Advocacy Update: AFTD Ambassadors Offer Insights at July NAPA Meeting
At the most recent meeting of the National Alzheimer’s Project Act (NAPA) Advisory Council, AFTD Ambassadors Katie Zenger and Terry…
Help & Support: Genetic Testing and DNA Banking
The decision to undergo genetic testing for FTD is deeply personal. Many want to know their genetic…
The Lived Experience of FTD: Tracking Changing Behaviors in FTD
For people living with an FTD diagnosis and their care partners, keeping track of the changing behaviors…
Guest Feature: Filmmaker and FTD Caregiver Shares Story of Love and Connection in “Pedacito de Carne”
Living with FTD can be exhausting, challenging, and at times deeply upsetting for people with a diagnosis,…
Help & Support: AFTD Resources for Kids and Teens
Unlike other types of dementia, FTD most often occurs in middle age, when many families have children…
Tips & Advice: Finding Support for Your FTD Journey
Isolation is common for persons diagnosed, care partners, and family members on the FTD journey, as FTD…
Advancing Hope: AFTD and Packard Center for ALS Co-Host Innovative Interdisciplinary Workshop
The abnormal accumulation of the protein TDP-43 occurs in both FTD and amyotrophic lateral sclerosis (ALS), suggesting…
Aphasia Awareness Month: Resources and Guidance for Managing Primary Progressive Aphasia
June is Aphasia Awareness Month, bringing awareness of language-based disorders to people around the U.S. While many…
Advocacy Update: AFTD Meets with NY State Senator Michelle Hinchey for FTD Week Announcement
AFTD staff and volunteers traveled to Albany on May 22 to meet with New York State Senator…
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