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Dear HelpLine: Brain Donation
Dear HelpLine, How do we learn more and start the process of arranging a brain donation for…
Advancing Hope: AFTD and Registry Staff attend Neurology Meeting
AFTD partnered with the FTD Disorders Registry to attend the annual American Academy of Neurology meeting April…
The Lived Experience of FTD: Frustrations of FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…
Tips & Advice: Roaming vs. Wandering
In FTD, “roaming” refers to a form of compulsive behavior that presents as walking, biking, or driving…
Dear HelpLine: Hyperorality
Dear HelpLine, My loved one is focused on eating sweets like cookies and candy bars, which is…
Guest Feature: Finding Support and Understanding on the Go with the Hidden Disabilities Sunflower
For persons diagnosed with FTD, simply existing in public can be challenging. FTD’s symptoms can cause difficulties…
The Lived Experience of FTD: Driving and FTD
The following column was written by members of the Persons with FTD Advisory Council. Members of the Council…
Dear HelpLine: Looking for Support Options
Dear HelpLine, Our family is looking for ways to connect with other FTD care partners for support….
Advocacy Update: Rare Disease Day and FTD
Rare Disease Day, which occurs annually on the last day of February, was established by the European…
Guest Feature: Somebody’s Sister
FTD is an aggressive disease that disrupts people’s lives and relationships, with families often unsure what they…
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