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Researchers are working on an iPad app-based cognitive test for people with FTD

Clinical Trial Actively Recruiting for Test of FTD Diagnostic App 

Researchers at the University College London Dementia Research Center are in the midst of a clinical trial…

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Matt Follows, supported by a team of friends and loved ones, managed to hike to the northernmost point of Australia despite Follows's corticobasal syndrome diagnosis

Australian Man with Corticobasal Syndrome Hikes to Cape York 

An Australian man with corticobasal syndrome (CBS) made it to Cape York, the northernmost tip of Australia,…

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Disproportionate Burden of Caregiving for Black Women

Dementia Advocate Highlights Disproportionate Burden of Caregiving for Black Women  

Dementia advocate and thought leader Aisha Adkins wrote recently on the disproportionate burden that Black women face…

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Retired Australian psychologist Bobby Redman, who was diagnosed with frontotemporal dementia, shares how technology helps her in her day to day life

Retired Australian Psychologist Shares How Tech Helps Her Manage FTD 

Bobby Redman, a retired Australian psychologist diagnosed with frontotemporal dementia (FTD), shared with The Sydney Morning Herald…

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Raynor Winn, author of The Salt Path, shared the story of her and her husband Moth's journey managing corticobasal degeneration during their 630-mile hike

“Salt Path Couple” Share Story of Living with CBD and Hiking Through Nature 

Raynor Winn, author of The Salt Path, shared with The Telegraph how she and her husband, Moth,…

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Researchers investigated the role of Enlarged Perivascular Spaces (EPVS) and White Matter Hyperintensities (WMH) in frontotemporal degeneration (FTD)

Study Investigates Role of Enlarged Perivascular Spaces and White Matter Hyperintensities in FTD 

A research paper published in Frontiers in Aging Neuroscience earlier this year investigated the behavior and role…

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“Zoey’s Extraordinary Christmas”

“Zoey’s Extraordinary Christmas” Creator Shares Personal PSP Experiences That Inspired Special 

Zoey’s Extraordinary Christmas creator Austin Winsberg discussed his personal experience with progressive supranuclear palsy (PSP) that inspired…

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Researchers at UCSF have found a link between the degeneration of sleep/wake controlling neurons and PSP-related sleep issues

UCSF Study Investigates if Irregular Sleep in People with PSP Caused by Neuron Loss  

A study by researchers at the University of California, San Francisco investigated if the loss of subcortical…

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Collages created by Cathey Merrill to honor and remember her late husband Ron, who was diagnosed with bvFTD

Words of Encouragement: Coloring Book Collages

Coloring Book Collages by Cathey Merrill Ron and I married when I was 17 and he was…

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How to Support AFTD’s Mission through Your Workplace 

AFTD’s volunteers and donors are essential to advancing our mission. Each contribution of time and funds provides…

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