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The Lived Experience: Brain Donation
By Cindy Odell I was diagnosed with bvFTD more than ten years ago. My immediate reaction was…
Guest Feature: “Until We Knew, Twice: Life With MND/ALS and FTD” Shares a Story of Love and Grief on the FTD Journey
The FTD journey can be an isolating experience; it can often feel like nobody knows what you…
Perspectives in FTD Research Webinar: Brain Donations — Who, What, Where, When, and Why?
In this Perspectives in Research Webinar, presented jointly by AFTD and the FTD Disorders Registry, Dr. David…
March’s Athlete of the Month: Lynne Lewis
Our Charity Miles Athlete of the Month for March is Lynne Lewis from Pennsylvania. Lynne uses the…
Advocacy Update: AFTD Ambassador Corey Esannason Meets with Staff from State Senator Andrea Stewart-Cousins’ Office
On March 3 AFTD Ambassador Corey Esannason met with staff from New York State Senator Andrea Stewart-Cousins’ office….
Annual AFTD Hope Rising Benefit Raises Crucial Funds for Fight Against FTD
(L-R: Hope Rising Benefit Co-Chair David Zaslav, AFTD CEO Susan L-J Dickinson, AFTD Board member Kristin Holloway,…
Study Highlights Importance in Differentiating Varying Types of Disinhibition in bvFTD
A study published in the medical journal Cortex highlights the importance of differentiating between the various types…
AFTD Staff and Volunteers Featured in Domestic and International News Stories
Members of AFTD’s staff, Board, and Medical Advisory Council (MAC), as well as AFTD volunteers, were featured…
New Book on Atypical Dementias Explains FTD with Case Studies and Lived Experiences
A recently published book, Atypical Dementias: Understanding Midlife Language, Visual, Behavioral & Cognitive Changes, provides insight into…
Study Recommends New Approach to Paying for Dementia Care
A study recently published in Health Affairs highlights the high costs of dementia care and the need…
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