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FDA Grants Breakthrough Therapy Designation to Experimental FTD Therapy
The U.S. Food and Drug Administration (FDA) has granted a “breakthrough therapy designation” to latozinemab, an experimental…
UK Researchers Discover How to Block Toxic Protein Associated with FTD and ALS
Researchers at the University of Sheffield have discovered how to prevent the production of toxic repeat proteins…
Dear HelpLine: What to Look for When Considering Facility Care for a Person with FTD
Dear HelpLine, We have reached the difficult decision to look for long-term facility care for my sister,…
“The Longest Goodbye”: Montana Woman Shares Family’s FTD Journey in Interview
Krista Payzant of Montana characterized FTD as a thief that “strips the person of who they are”…
NY State Senator Michelle Hinchey Introduces Bill to Create State FTD Registry
New York State Senator Michelle Hinchey introduced a bill on January 3 to create a statewide FTD…
Guest Feature: Capturing Voices – Considerations When Writing YOUR Book
The grief caused by FTD is persistent, lasting well beyond the end of the FTD journey for…
Researcher Discusses Integrating Genetic Testing Into Routine FTD/ALS Care in Podcast Interview
Offering genetic testing to persons diagnosed with FTD/ALS disorders should be a routine part of clinical care,…
Perspectives in FTD Research Webinar: Gene Therapy for FTD — What Do I Need to Know?
In the last several years, new clinical trials have begun for drugs that can potentially slow or…
News Report on Tallahassee Couple’s FTD Journey Highlights Challenges of Misdiagnosis
A report aired by Tallahassee news station WTXL27 shares how FTD has affected the lives of a…
Volunteer Update: AFTD Ambassadors Welcome New Cohort
The AFTD Ambassador program was launched in 2019 as a new opportunity for AFTD’s volunteer leadership. Since…
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